I am on tecfidera so have the 3 monthly blood tests to check all my levels are safe. Because of where I live, I have the blood taken at my GP surgery. It is then sent to the hospital in the same “trust” as my doctors before being sent to the hospital that actually deals with MS in our region!
No-one ever let’s me know the results of these blood tests and the results are not even sent to my GP. So I have to phone and ask for these results, even more so because on several occasions the results have not even made it to the correct department!
I have been phoning the hospital since Friday now, and been greeted by an answer message saying the ms nurses are dealing with emergencies only at present. So I left a message. I tried again and it said on the message if calling for any other reason to contact the MS coordinator on a different number. I did this and left a message, still no call back! Today feeling totally frustrated and sick of these people playing with my life, (as i am sure most of you are aware there is a risk of PML, hence the 3 monthly blood tests) so yes they literally have my life in their hands, I have telephoned my neurologists Secretary, only to be greeted by another answer machine. I left a message saying that if no-one can be bothered to let me know if I am safe or not then I am considering stopping my dmt.
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