Last reply 4 weeks ago
Advice would be appreciated

Hi all,

First of all, this website is fantastic and I’ve learnt so much from it. There’s some very kind people on here who, from posts I’ve read give some well thought out advice.

I’ve been experiencing some strange symptoms for the past 3 years now, slightly longer perhaps. The very first were tingling in my hands and feet. I have then gone on to experience a few more, around once per year that have been fatigue, wobbly legs and double vision. My most recent one was that my balance was affected, and feet unsteady.

I’ve had tests throughout the years, including MRI’s and EVP tests, all which have come back clear. This has made the neurologist come to the conclusion of FND (Functional Neurological Disorder). Have you had any experience of someone initially being diagnosed with this, only to have MS later on? Can someone go for multiple MRI’s over many years being clear, only for the lesions to be visible on later ones?

These symptoms are becoming worse, and whilst I understand with clear MRI’s this points away from MS, the symptoms seem to point that way.

Any advice would be much appreciated.
Many thanks for any help.

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nutshell88
1 month ago

Hi there,
First symptom nearly 99% is tingling, numbness
Some get it often others rare,
Regarding to legs I’ve struggled with that since first month 14 years ago
I still do maybe because I refused treatment
Double vision accured to me every time I remember it nearly hehe

There is a way to help a bit
Put 1 finger infront of your face focus on it 10 seconds use it to point at something while you follow it with your vision

Result is not instant

Thats if its related to MS


stumbler
1 month ago

Hi @anon1 and welcome.

FND (Functional Neurological Disorder) is another way of saying that we haven’t a clue, so we’ll keep an eye on it and see what happens. It might seem a bit of a cop-out, but our medical professionals have limited information available to them.

MS, as a condition, is notoriously difficult to diagnose. It’s a question of “eliminate the probables and investigate the possibles”!

Ultimately, diagnosis is down to MRI scans, Lumber Puncture, Evoked Potentials and your Clinical History. By Clinical History, I mean your recounting any strange symptoms that you have experienced and when. A symptom diary is a useful tool to record such events (https://www.mstrust.org.uk/a-z/diary-symptoms).

Unfortunately, MRI Scans, which should cover brain and spine, don’t present a comprehensive view of damage to your Central Nervous System (CNS).

A diagnosis of MS is never given lightly and must satisfy the McDonald Criteria (https://www.mstrust.org.uk/a-z/mcdonald-criteria).

So, it is wait and see. Just maintain a symptom diary, live healthily, eat healthily and avoid (or manage) stressful events.


anon1
4 weeks ago

This is good advice, and something I will follow to help.

Many thanks for your advice

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