This is my first post so please be gentle!
I was diagnosed with RRMS a couple of weeks ago. It was a matter of 4-5 months between GP appointment to diagnosis and, although I was worried it was MS since weird symptoms 4 years ago I just assumed Dr Google would be wrong, I had no idea that the neurologist was looking for MS so it’s all very new.
I’ve never been a patient patient, and have always had to be very self reliant, determined, independent, and always the person looking after others and turning down help. I had already made practical changes in my life to accommodate ongoing symptoms and that’s working, I’ve built in a lot of flexibility. But I hate that I can’t know what will happen next, or when, and I’m scared that it will get in the way of my life! And appointments and monitoring symptoms and learning about MS all feels like an extra job!
Anyway, I wanted to ask, how have you managed adjustments like that where MS has challenged your way of thinking? Did you have to learn how to accept help? How did you do that?
Thanks for reading, and (hopefully) replying!
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