Last reply 3 years ago
Acupuncture.. got to get my qi balanced.

I’ve booked myself in for my first ever session of Acupuncture in a desperate attempt to get my body back into some sort of balance.. I feel I’m all over the place at the moment with constant back pain, wobbly walk (not sure it can sort that out but…) don’t sleep well, bladder problems are driving me mad.. feel like I am desperate to go and then NOTHING.. :-/ and the tingling in my left hand and my left leg along with spasms in both legs sending me crazy.!!.. I know it’s a big ask of some tiny needles to fix some of my problems but if I can just feel a bit more centred it may help.. I’ll let you know if I feel any better for it.. (going next Tuesday evening) 😀

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caterpillar
3 years ago

How is it going, @northernlass? I have never tried acupuncture, but it is probably like most things – one has to be patient with it.
Have you tried meditation? I find it helps my psyche when I am in trouble.


tracyd
3 years ago

It’s important to find someone who understands MS as well as acupuncture, one without the other won’t do a lot.

I’ve been having it done weekly since the start of December last year and I have to say the massage that comes with it does wonders for my relaxation – the man who does it has hands like an East German shot putter of old and the muscles and ‘meat’ underneath do still feel so it’s great if a little ouchy at times 🙂

The acupuncture has made me incredibly aware of just how far through my body the lack of sensation has travelled. I have no sensation in my skin anywhere but from just under my boobs to the top of my head and in my right arm, everything else is best described as comfortably numb (or annoyingly so) I’m now having electricity applied through the needles as well which is a little like a lot of tiny tens machines plumbed into your body. Some I can feel others I can not even though I can see them jumping around.

I have to say though I feel I am ‘doing something’ while I wait for my DM treatment to start the positivity of doing something helps focus me more on being aware of what I put into my body and how it responds to things and that can only be a good thing. Positivity I think is one of the most important things to us when MS is playing up

Good luck xx


graham100
3 years ago

Let me know if it helps. Might give that a go. Good luck. X


northernlass
3 years ago

Hi Not got an appointment until next Tuesday evening @caterpillar so will let you know if I find this any good for the symptoms of MS that are really starting to bug me now… and you too @graham100 I’ll keep you posted if it’s worth the £40 a pop or if I might need to find a more specialist Acupuncturist who has an understanding of MS and the symptoms like @tracyd says (Also with massive hands like an East German shot putter 😉 ) I may also look into my local MS center to see if they offer treatments like this.. I would like to try Meditation @tracyd but my mind is a jumbled mess still at the moment and we do have a meditaion center run by Buddist in my town so thought about maybe going there when I feel more ready but as long as I don’t have to sit on the floor as I know I couldn’t get back up by myself… :-/ I’ll keep you all posted as to how my treatments that I’m going to try are going.. 😀
Few best things so far are: getting an automatic car with power steering.. getting a blue badge.. and getting PIP so I can investigate if it’s worth spending a bit of money on me to try and help me feel better.. normally bottom of the list for treats.. :-/ What are the best things so far that you have invested in to help with having MS..??


hunterdog
3 years ago

Acupuncture for myself helps with waking up the nerves. Been in treatment since New Year, dx’d in November.

Initially my LHS arm and leg (drop foot) were in bad shape. Doing acupuncture twice a week has helped me regain better control on LHS; walking better, and improved sensation. My acupuncturists is familiar with MS.

Good luck!


graham100
3 years ago

Hi hunterdog. That sounds good. But I wonder, with rrms if it would have improved anyway? And you would have been £60+ a week better off?? (Makes you think)


hunterdog
3 years ago

Good point! I think about that as well, however I do feel much better after acupuncture treatment; improved walking is noticeable.

Acupuncturists attaches electrical clips to needles, which really gets nerves/muscles moving (just slightly) like TENS device. I think it worth a try; whereas it cannot hurt!


tracyd
3 years ago

@hunterdog
It sounds like you are getting very similar treatment to me, can you feel all the needles and electric pulses ? I find that in my right leg below the knee I feel nothing at all 🙁


hunterdog
3 years ago

Electric pulses are increased/decreased to suit my comfort; acupuncturists closely monitors all attachments/needles throughout my treatment, along with getting my feedback.

My LHS needs more/higher electrical frequency since that’s the side I suffered paralysis. If not increased I feel next to nothing.


northernlass
3 years ago

Hi all as promised a report back about how I found my first ever Acupuncture session yesterday evening. I took along my reports from my back surgeon and the Neurologist’s report so that the Acupuncturist could see where some of my problems are. She took a full and detailed report of my medical problems and where I wanted the most help (For me low back pain and tingly MS symptoms in my legs).Was given a consent form to fill out which had some worrying side effects to Acupuncture like feeling faint or light headed afterwards and shouldn’t drive (!!!). She then took my pulse both wrists.. and checked my tongue and said it was dry and swollen.. !!! 😛 and then I had to undress down to underwear (Thank god was wearing best Bra..) lay on my side on the massage bench but I’m a big girl so the weight of me on my left hip hurt so she said I could lay on my tummy with my head poking through the hole on the bench. Then she showed me the little needle and said where she was going to put it… explained how it might make me feel and then TAP the first needle went into my right hand near the base of my pinkie finger at the side…. felt nothing but the TAP.. No problem… she continued along my spine again felt the TAP of the needle as she put it in but no pain no stinging until one went into my right calf at the side.. that one just stung a tiny bit but was fine.. I had one in my foot.. again nothing but I often get spasmodic flicks in my legs for no reason and my right leg decided it wanted to do a few flicks but it wasn’t the needles I don’t think.. She then gave me a bit of centering by laying (Very warm 🙂 ) hands on my head, neck, shoulders and spine (One hand on my Coxyx area which with the warmth wasn’t unpleasant) while the needles did their work.. so all in all treatment was about 20/25 minutes because the medical history took a time to do she took the needles out (again no problems pain wise) and I sat up slowly.. I felt really really strange.. almost light headed and a bit floaty.. got dressed carefully stood up slowly and was AMAZED that my low back pain had GONE.. walking was strange but easier as I didn’t have pain from my hips or back but I still had my balance issues and weak legs but so nice to move without pain. 🙂 And then woke up this morning still without back pain after having a good 4 hours sleep (quite good for me and then also to be able to go back to sleep for another 2 hours almost straight away last night, miracle 🙂 ) So for me and sorting out my back pain it worked… still have my MS symptoms with both of my legs but well worth the money for me to rid me of that constant pain for however long. Going back next week for another session to see if that can help more with MS symptoms. “PEACE OUT MAN” 😉


graham100
3 years ago

Well that sounds good. When you say lower back pain. I have a really stiff lower back. Makes it hard to stand up straight. Not sure I would call it pain,, just feels like I need someone to crack it back into place. Had a tooth ache like pain in my neck. Untill my physio worked on it. Gone now. At mo anyway. Let’s hope it does even more for you nxt time.


caterpillar
3 years ago

Sounds good @northernlass, hope the next session works even better! 🙂

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