Last reply 6 years ago
2nd day going to work I've wet myself

Luckily had a change of clothes on me, but if my toilet routine is changed for any reason (train delays or early hospital appointment) my bladder (and jeans) are buggered if the location of the nearest wheelchair accessible toilet is unknown to me or not available. Am on the waiting list for PTNS, a kind of nerve stimulation which is meant to help those with frequency issues, but it seems like my bladder is not prepared to wait!

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stumbler
6 years ago

Fair play to you, DJ, for holding your hand up to this problem.

Do you have a local incontinency support, via your MS Nurse? They can discuss medication and see whether a conveen (condom catheter) would provide the security and reassurance that you may need.


DJDsouza
6 years ago

Yeah, am in touch with local incontinency support. They provide me with useless pads, as my accidents are too overpowering! Have tried Vesicare and Oxybutynyn, but both seem to disable me more than provide any real benefits….. Neurology Urology support at the hospital recommended the acupuncture style PTNS, but there is a huge waiting list. Not sure if my recent episodes qualify me for moving up the list 😉


stumbler
6 years ago

Well, you’ve only got Detrusitol to try! 🙁

But, do consider the Conveen way forward. It’ll provide you with peace of mind and it’s quite unobtrusive.


DJDsouza
6 years ago

(I know I’ve got a rep to protect, but these things happen! 😉 )


scotkiwi
6 years ago

Sorry to hear that mate – I too know where every bathroom is in town (the free and the 30p in my pocket)
Ive dropped a lot of weight (7 stone) and that has massively helped control things too. I have gone from being almost bathroom obsessed, to just being aware and knowing I can manage things better.


DJDsouza
6 years ago

Well, I seemed to have resolved this problem today by not drinking as much water this morning as I usually do! Feel good within myself


stumbler
6 years ago

DJ, don’t start to cut back on your fluid intake too far. Dehydration can cause you more problems than an over-active bladder.

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