marc_doucett 25/02/18
Last reply 1 month ago
13 Months post IAHSCT

Hello @shift.ms friends! It’s been 13 months since my IAHSCT and I’ve had all of my one year follow-up appointments and thought I’d update you all on my progress.

I feel like my old self again! ALL of my lingering MS symptoms have faded. This morning I did a slow paced 10K jog! That’s a full 9.75K more than pre transplant. I’ve stopped receiving my monthly IVIG infusions as my immune system is now strong enough to fight on it’s own and we have planed my immunizations to start in July. I’m back to work full time and am getting busy putting my life back in order.

I recognize my extreme good fortune and pray that this kind of treatment becomes widely available because for me, it’s been miraculous!

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paulmorrison
1 month ago

Hi. What is it and how do I get it?


marc_doucett
1 month ago

Hi @paulmorrison I’ts “immunoablation and autologous hematopoietic stem cell transplantation” and the “how do I get it” largely depends on where you live and the state of your MS.

If you are from England, I believe you can get this treatment in London although, it might still be in clinical trials. It’s worth looking into or at least speaking to your neurologist about.

Marc


stumbler
1 month ago

Great news, @marc_doucett .


paulmorrison
1 month ago

Thanks @marc_doucett, I think my ms might be too far advanced, but it is well worth looking into. It is always good to hear good news story’s. All the best, and keep well.
Paul


seanachai
1 month ago

Great stuff Marc, HSCT definitely seems one the stronger candidates for a longer term therapy; a lot of research going on in Israel in this space, improving the therapy by injecting straight into the Spine into the CSF.

This hospital and Dr. seems to be at the cutting edge of this therapy….

http://www.hadassah.org/health-medicine-in-israel/research/multiple-sclerosis-research.html?


vixen
1 month ago

Hello @seanachai, I wonder if this was the clinic on the recent documentary about the London lawyer? Very good to pick up these pieces of news, as with the current Myelin breakthroughs, too…. 🙂


seanachai
1 month ago

Hi Vixen, yeah was was the same doctor, I assume the same hospital.

The 2nd trial completes in March 2018, not sure how long after before we get results…

https://clinicaltrials.gov/ct2/show/NCT02166021?term=stem+cell&cond=multiple+sclerosis&cntry1=ME%3AIL&rank=1

Again annoyingly, no PPMS…

it states…

Progressive form of MS (RPMS, SPMS)

go figure

This plus remyelination therapies and possible combinations are exciting.

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