Hello Everyone!👋, My name is Audrey, and through the years I’ve been on a few social support sites. I haven’t posted about my MS or been on a support site in many many years, though. I’ve been officially diagnosed with MS since Nov., 2009 (bout of O.N.). My mother was diagno…

This post from the Barts MS blog stats it with science! Having had MS for 26y I feel that I have largely missed out on the brain health benefits of modern DMTs. In an odd sort of way I envy the younger and newly diagnosed people (not the MS part, that sucks) because of the increase in options and t…

So my mum has ms and i think so does my aunt. I’m just turning 17 and I’ve never had any medical issues or felt the need to be tested, but about a month ago i noticed a weird like tingley feeling at the bottom right side on the back of my neck, i ran my fingers over it so see what it wa…

Hi everyone, I was with my Neuro on Monday and shd told me that, given the evolugion of my symptoms lately my RRMS may had become already an SPMS. Thus she recommended me to start taking Ocrevus and leave the treatmenr I am on at the moment (I’ve been taking Tysabri for the last 8 years). I t…

I went ahead and had my nose pierced!!! It was a great decision, no pain, no infections and finally did something for myself! This Christmas will be my first with MS and I’m sure many of you will know that it’s annoyingly, a big deal. I am still able to do everything and be myself, I ju…

How benign is benign? Would you ever decide to stop treatment? I haven’t posted here before, although I’ve sometimes browsed. But now I’m pondering a big question about possibly benign MS: How benign is benign enough to consider stopping treatment – when that treatment has …