Have had MS for over 30 years . I was in the original copaxone 251 patient double blind study beginning in 1993. The medicine has been good to me…with 30 years of little MS problems. On 10/22, I had a cardiac ablation to “fix” my hear palpitations. On 10/27, my health fell apa…

Wondering something like this could happen in the near future to remyelinate spinal cord lesions. Wouldn’t that be something to look forward ? https://myelitis.org/upcoming-phase-i-remyelination-trial-using-q-cells-in-transverse-myelitis/

I am scheduled for my first dose of Ocrelizumab this Friday. It has been a long campaign to get this. Am happy to share in DM’s but don’t want to subject y’all to an unsolicited shaggy-dog story about it. As with most things MS related, it is relevant to me but there are few detai…

I have been diagnosed with RRMS for 25y now. I have had steroids, Beta-interferon (Rebif), Glatiramer Acetate (Copaxone) and now Dimethyl Fumurate (Tecfidera) from the DEFINE trial onwards. I take high dose prescribed Cholocalciferol (Vitamin D3) 10000iu every other day in order to keep a level in …

DEFINE is the name for the long running Tecfidera (Dimethyl Fumurate) trial. You won’t be on it by accident so there is nothing of interest if you are presecribed Tecfidera by your neurologist. There is nothing to be concerned about if you aren’t on the trial. However, if you are on the…

One of the scariest side effects of ms dmts is pml. This article seemed pretty exciting and didn’t seem to make the news much so I thought I would post it here. Given how serious and rare it is not sure what kind of trial would be needed. I hope to find out more because if anyone gets this…