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@squigonometry 

Last reply

squigonometry

Stress from this place

Nothing makes MS worse than stress, and spam is good for nothing but creating more stress. This place seems to be a haven for all sorts of spambots. For example: @mattcharita440 . This bot has followed several hundred user accounts, and has tricked at least 20 users into following it back. I ca...
1

Animated Symptoms | Spasm

Shift.ms Series

Animated Symptoms | Spasm

@kyrgyzkiwi 

Last reply

kyrgyzkiwi

Anyone getting the MS hug?

I’ve heard folk talk about this and am not 100% sure what it is. I have a continuous tightness around my waist, its only relived by lying down. Is this the MS hug?
First posted on the Shift.ms app
1

@Bettyann 

Last reply

Bettyann

Tekfidera

I was diagnosed in 2004. I was started on rebid for 6 years. I then changed to Avalon and then betaferon.I now take telfidera twice a day. I have Breton it for +_ 6 years. I always ate and then took them without any reaction. I now (the past two months) have started getting a very bad reaction. M...
First posted on the Shift.ms app
8

@MarieDate 

Last reply

MarieDate

Denial?

If I have a rare good day and feel relatively well I tend to push the MS aside so it's not in every waking thought. Someone I was chatting to recently told me I was in total denial! After 11+ years since diagnosis I kind of think I've learnt to walk (or stumble) alongside my MS by now. I mean co...
First posted on the Shift.ms app
48

@gagirl9986 

Last reply

gagirl9986

Back

Anyone ever have to get a spinal tap?
First posted on the Shift.ms app
10

Do I Really Need Accessible?

Shift.ms Blogs

Do I Really Need Accessible?

@CrystalNiccole 

Edited

CrystalNiccole

First Heplisav B Vaccine Today

Hi All, Just wanted to celebrate 🥳 my vaccine milestone with all of you! Today I took the first step toward treatment. My Mayo doc and my local neurologist said it's mandatory to get the hepatitis B vaccine series before starting Kesimpta or Ocervus...as an exposure to hep B would be fatal once I...
First posted on the Shift.ms app

@Jpetridish 

EditedLast reply

Jpetridish

Hello, so I have a question or just want anyone’s opinion or help if possible please. I first had optic neuritis in 2021, was put on steroids and eventually got better but did leave some perminent damage. I had my first baby in 2023 and after I started to slow down breast feeding I started to get some interesting symptoms. Every morning my hands would be extremely itchy not like dry skin, but from the inside it was driving me insane it was every day and then I started getting random pain either on the top of my head like a bad bruise or on my back which I even thought was shingles, cause it was so painful to the lightest touch, but there was nothing there I even went to the doctor and in about a week that pain subsided The hand itching and the pain on my head continued though. In January I had noticed signs of optic neuritis happening again, but in my other eye, I went to the doctors right away and they had sent me to the emergency room. I was put on Iv steroids and got an MRI I was there for about four days. They saw some white matter lesions in my brain, but it wasn’t clear because of movement. They then did a spinal tap which came out clear. I had gone home and had to follow up with a neurologist about a week after I got home? I had horrible symptoms I was holding my child and my knees gave out my hands were hurting. I was twitching all the time I could not sit still it was worse when I was laying down at night my body just would not stop moving and at some point I could not feel my foot I felt like it was in an ice bucket. I was extremely tired, and I would get random goosebumps in blotches on my arms for no apparent reason I started getting some bad headaches too I then woke up one morning and I could not lift my left arm. It was like it was asleep. I would get pins and needles and different parts of my body also but the muscle weakness in my left arm was horrible. I could barely hold anything. It is still like this to this day, but not as bad if anybody came up and touched me without me, knowing my whole body would spaz out almost like my reflexes were on high drive I have seen three different neurologist since the first neurologist is convinced I have MS the other two which I actually liked better and our MS specialists keep saying I may have it. They did a repeat of my MRIs and again had some white manner lesions in my brain, but they were identical and not in the usual spots where MS lesions would be so they am holding off on fully diagnosing me and want to wait and repeat and see if there are new lesions in the following months. I have not been able to work since since I have a physical job I have good days and bad days if I get sunburn the very next day my hands feel like they’re in a vice. The pain is horrible. I want to know what everyone thinks do I have MS are they just trying to cover their butts and wait or what

First posted on the Shift.ms app
3

@bpapi22 

Last reply

bpapi22

Social Anxiety

I was diagnosed in 2006 with PPMS. Tysabri & Gamunex-c not work last 3 yrs. The past 14 mths it hit hard, I barely able word form, speak and walk with cane/walker. I have bad social anxiety, especially around others I know. What y’all found help calm that? I’m find I hide out alone to not feel it.
First posted on the Shift.ms app
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