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@staceyisabel88 

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staceyisabel88

Bore off Optic Neuritis...

Hi all... I'm new here. I am so happy to have stumbled across this site. It's 2am and I'm wrestling a teething baby currently.. so it couldn't have come at a better time! I was dx'd just before Xmas when my son was about 5 months old.. This is off the back of suffering from optic neuritis since mid October. I don't know what MS I have yet. It's still very early days and I'm not on any treatment yet. I have several scans ect booked in the not too distant future.. so I guess I'll know more soon. I don't *think* I have any other symptoms other than the ON. I am severely sleep deprived from aforementioned darling child so can't be sure what is down to that and what could be MS! The ON is so frustrating. It's in my right eye and the vision in my left is very poor (I have a lazy eye and duane syndrome in it - lucky me hey!) I can't focus properly and the contrast is off on everything. It gets much worse when I'm hot (I seem to get hot all the time? MS related? Or because.of the baby blubber I'm still carrying? Ha) Consultant has said not to lose hope of it getting better.. but agrees that it's been a long time with no improvement.. so could be permanently damage to the nerve. Argh! Any other ON sufferers? Would be interested go hear your experiences. Also any other advice for an MS newbie is much appreciated! Stacey :)
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@potter
@potter
 

I am sorry you have to deal with this while you are taking care of your new baby. I don't know very much about ON, when I got through with my MRI the neuro told me I had a lesion almost touching my optic nerve. I did have a hole in the vision in one eye but that healed when I started a DMT. I also try to eat foods that fight inflammation such as fresh pineapple. I am hot most of the time, I have heard that can be a common problem with MS patients. I keep my furnace set at 65 F during the winter. Hope you get through your tests soon and find out what it going on. Potter

@Stumbler
@Stumbler
 

Hi, @staceyisabel88 and welcome. It can't be easy for you with a young child, and this may be contributing to your MS problems. Stress and tiredness won't help your MS, so you need to try and find a balance between being there for your son and looking after yourself. Perhaps try and get a nap when your son does? Has your Neuro mentioned the possibility of High Dosage Steroids to address the Optic Neuritis problem? It's a potential treatment to a relapse, which is causing problems. It's not a cure, but it treats the underlying neural inflammation and helps you get a recovery underway. May be worth mentioning it...... As to your heat issues, yes, we can have issues with our "thermostat". Heat sensitivity can be a problem - https://www.mstrust.org.uk/a-z/heat-sensitivity For the present, try and take things easy (I know, young child!) and learn what you can about MS - you've started that, hence you're here. MS is now a manageable condition, so it's all about learning how to best manage it. :wink: