@melibu 

Last reply

melibu

Hi everyone :) maybe a diagnosis

My name is Melissa iv just recently realised im experiencing symptoms of MS. Iv been back and forth with doctors for over a year who all dismissed my symptoms as nothing, telling me i was depressed and fobbed me off. Recently in Jan of this year I was at work and started to get a migraine which I get a lot when all of a sudden I thought I was having a stroke. My right eye went blurry, my right arm went numb and tingly from shoulder to finger tips and my face went slack on the right side and i started dribbling. That all stopped after about 10-15 minutes except the arm. My thumb and index finger and half my palm stayed numb ( which endd up lasting 7 weeks) . I went to the doctor who fobbed me off again saying that doesnt happen with migrain and i immediatly made another appointment with a different doctor for 2 days down the track. This new doctor is amazing!! He was worried and sent me for an MRI on my brain which i had within 2 hours which showed alot on lesions on my brain including one which is 6mmx9mm. Doctor then ordered cervical and spinal MRI which came back clear and organised a neurologist appointment. Saw the neurologist 6 weeks ago who did all the general cognative and reflex tests and said he could see something in my scans right off the bat but that he needed to discuss wit the board of other neurologists in their next meeting and would get me back for the next clinic to go over tests. In the mean time iv had a lot of dead/ heavy arms, constant tingling/ full on pins and needles in both feet and knees, throbbing sharp pain in both shins and forearms and hipbones, dizziness, blurriness in my right eye, almost complete loss of apetite and constant fatigue aswell as a very overactive bladder. Saw the neurologist again 4 days ago and he repeated all the general reflex and cognative tests again and commented that my right side which is my dominant side isnt responding as well as it should to touch when he pricks it with a sharp pin or touches it. He then showed me my scan of my brain, 3 large white mass blobs which is said is very indicative of MS. He ordered a Lumbar puncture for sometime in the next 6 weeks for me. I mentioned to him i had bacterial meningitis when i was younger and he said that this makes sense considering the lesions and is lookinginto a vitamin D trial we have going on here in the Gold Coast to see whether its possible to participate but i think it may be too late as that ends this year.. so thats my story for now.. more to come in the next 6-8 weeks i guess :)
@potter

Welcome to the forum I am sorry you are having such a rough time. Most of us know what you are going through. My symptoms were never that dramatic but it took me 10 years to get a doctor to believe me. You can ask any question you want here or just rant and rave, we will try to answer it and may join you in the ranting and raving. Potter

@melibu

I have spent the last 2 nights at work ( i work graveyards shift so its quiet) reading the threads on this forum and have only got about 20 pages in and have already realized that the symptoms iv been having for atleast 2 + years are looking highly likley RRMS. Every symptom i have is mentioned on here pretty much its like looking in a mirror. Its so fustrating that these doctors have been so ignorant just fobbing me off sayng its in my head!! I could have caught this so much earlier!! Dead arms, irregular body temp, constant pins and needles, numb tingly hands, sharp burning pains, headaches, migraines, blurry/ double vision, random sudden car sickness being a passenger, very hyper bladder, loss of sensitivity and reaction on right side of my body ( dominate side) the list goes on. I knew i wasnt crazy but the doctors just would not listen. Bring on this Lumbar Puncture so i can have this diagnosis done and then i can look at my options!! I want to hit this hard and fast if I get the option I feel I have been a sitting duck too long already- is this an over reaction? Or am i well within my rights to look at something as drastic as Lemtrada straigh after a diagnosis if thats what happens?