@lorag

Last reply

lorag

Want to have a whinge

I just want to say I am really sick and tired of not being able to walk without a crutch or my gofer or freezing when I need to step up a high side curb. I do get to the point that I don't want to go out because people feel sorry for me just want to be how I was 15years ago. OK got that out :-)

Stumbler

@Stumbler

I know exactly how you feel, @lorag , but life is what it is. We've been dealt a bad hand, but you have to play the cards you've been dealt. Don't get hung up on what you've lost, enjoy what you've got. ;)

Monica2015

@Monica2015

Hi @lorag, I totally empathasise! I find it extremely difficult to be considered "disabled" when in my head, I still consider myself as fit as a fiddle, as I was this time last year. It's amazing how deterioration comes swiftly and stealthily like a sly fox in the dead of night... I'm exactly the same on my crutches, attempting to mentally reason and visualise my approach, only for my weak legs to fail miserably. I then find myself chastising myself, which only adds to the whole distressful debacle. It's impossible to comprehend how things that came so naturally are as challenging as running for government! I understand. I then have a little rest in my car, and suddenly feel I'm ready to attempt the whole farcical episode again... I reason to myself : "Monica, it's just temporary. This too shall pass..." as has been my mantra for 11 years.

Monica2015

@Monica2015

@lorag, if possible, try to attempt some of the activities you enjoyed previously. I was in self imposed exile after the incessant relapses, and then the Lemtrada and infections, refusing social engagements. This week, some how or another, I've found myself in central London til 3am in trendy bars,laughing my socks off cracking jokes, and for once, not the only person wetting my pants! I was in good company, doing what I do best. Simple pleasures I had denied myself. I repeated this three times this week, stumbling home last night very late again last night (no drink consumed), having had an excellent laugh, remembering who I am again, crutches or no crutches, abismal balance etc but I am still ME!

Monica2015

@Monica2015

"Nice one" Georgie, did not realise that still waters run deep with you...

Monica2015

@Monica2015

Most excellent! A woman should always retain an element of mystery!!?

Monica2015

@Monica2015

That one I cannot quite master, although not wasted too many brain cells attempting... Xxx

Monica2015

@Monica2015

Omg!!!!! I was going to quote him!!! I'm in love with him and even my 11 year old son quoted him as he's heard so much from me!!! Good work, warmed up the cockles of my heart!! Picture of Dorian Gray, my all time fave book in the world. Even my son has read the kid's version 5 years ago. I love him, just the most eloquent, articulate, witty, interesting and alluring man ever!!!!!!

Monica2015

@Monica2015

Not my type physically ( like model pretty boy types with brains and wit) and was gay of course but my God he was sexy with his brain...

Monica2015

@Monica2015

Oh George, you really have made this chick smile today ..:. You actually dispelled Wilde's assertion, and understood me!!! Xxx

Monica2015

@Monica2015

Love his dark side! But so bloody sharp and witty. A man to die for...

Avengr13

@Avengr13

I love how the moderators on this site pay attention to posts, comment and ...well, just moderate! ; )

Monica2015

@Monica2015

Well you made me chuckle so all good! Off out to westfields to practice my walking. We have hijacked this thread!

Monica2015

@Monica2015

not too sure what @avengr3 has taken quite so much offence to that requires "moderating" but hey ho, not my deal...

Stumbler

@Stumbler

@avengr13 , the forum is really all about self-moderation, i.e. it is left to members to let others know if they've over-stepped the mark. And, then there is me, I do watch over things and I may step in if two members refuse to play nicely or there's a flagrant breach of the forum's house rules. In the main, I'm unemployed. :wink:

Monica2015

@Monica2015

Think I might have had my wrists slapped by @stumbler if I was guilty as charged!

Monica2015

@Monica2015

Ironic, me being cast as trouble maker for the first time, when usually on the other side of the bench...

Stumbler

@Stumbler

@monica2015 , I can't recall having a need to provide counsel to you. Anyway, I'd like to think that I'm courteous and chivalrous to the fairer sex. :wink:

Monica2015

@Monica2015

Exactly dear @stumbler, I would have hoped I could quite adequately have counselled myself. Nonetheless, you have guided and demonstrated to us all of those qualities in abundance, along with one of my most appreciated: a sense of humour coupled with a dose of self deprecation! ?

Monica2015

@Monica2015

Nothing changed there then Georgia xx

Monica2015

@Monica2015

PS typing whilst on passenger seat not the driver's before any further allegations are made...

Monica2015

@Monica2015

In not on

Monica2015

@Monica2015

Oh Georgia, you know you have overstepped the mark missy!!!! AGAIN!!?

Monica2015

@Monica2015

I really must stop! Farewell friends, parting is such sweet sorrow..?

lorag

@lorag

Thanks guys!

Monica2015

@Monica2015

@george1234, if you have ever had a girlie, you know that in every argument, you must always accept blame! Or else ?... Xxx

Monica2015

@Monica2015

@lorag, not certain we helped at all, but at least we may have provided some form of distraction! Hope today is better for you...

Monica2015

@Monica2015

@george1234, bloody hope so.. All this effort to make one person smile even...(even if just you!). Exactly, the death penalty would be infinitely preferable! My life sentence has been 15, long, painful years ?

Monica2015

@Monica2015

No, marriage, silly! Were you fibbing about finding yourself a chick??

Monica2015

@Monica2015

Am sure you had an arranged marriage with her under duress!! Poor girl... Yes, I always adopt that approach, have my husband and young toy boys on the side.. Never the twain shall meet. No joke, my brothers and friends have always called me a paedo! ... "All in the best possible taste" of course! Xxx Xxx

Monica2015

@Monica2015

Hmmm, neither!! Nor the inclination ?????☺️

Monica2015

@Monica2015

My ex of 8 years was 13 years my junior, and his predecessor was 8 years.. My friends say my type is pre-pubescent! ?

Monica2015

@Monica2015

Anyway, divulging too many of my secrets to you!!

Monica2015

@Monica2015

Xxx

Monica2015

@Monica2015

At my hotel now and just looked at your message, absolutely can never ever hear enough from Wilde the man! Thank you @george1234. I'm rather like that, I love to be anonymous (similarly I was like this with my special long term ex) so abhor the Facebook/Twitter revolution. Still not joined up, despite wishing to read the lemtrada testimonials etc... Like I stated previously: there should always be an element of mystery...

Monica2015

@Monica2015

Hi @george1234, funny he always called me moni! Hmmmm, difficult one to explain given my love of secrecy. Was the perfect guy ever, beautiful, dark hair, olive skin, stunning model looks, intelligent, witty, spiritual, adored me, loved me beyond words, waited for me for over a decade. My best friend. Thought he was just infatuated as I was his first love. Needn't have. He had far more maturity in his little finger than I had in my entire being. He stood the test of time. I pushed him away. Thought we might not last but his internal beauty far outshone the external. The most beautiful person I've ever met inside and out. But that's me, I'm a complex person. Have 3 brothers, and was always a lady like Tom boy. It's do or die in our house, all razor sharp banter. I stood my ground and loved every second. Like a guy, I've always found it hard to commit. Always been blessed with (my few) beautiful and intelligent boyfriends, but always the commitment issue.. Somehow I committed to my husband, (much to the shock of all) but my ex was one in a trillion. Anyway, all happens for a reason and I now have my gorgeous son etc. Xxx

Monica2015

@Monica2015

So so love Oscar! Total genius..... No one comes close to him! Xxx

Monica2015

@Monica2015

Hi @george1234, I'm both too complex and set my standards too exacting, of myself, and those close to me,but myself particularly. I love my son and my husband. I just wonder how my life would have been different if I had believed in all X had said .... In response to your question, yes he did fight! He exercised undue patience, waiting whilst I required my freedom, when I married, when I bore a son, despite being told repeatedly to just live his life. He waited regardless, in fact until last year... I simply thought he was too young and immature to make a lasting commitment, but he possessed more maturity in his little being than I in my whole being... Anyway, it is what it is. This is how I operate, in bizarre ways. I've had 7 marriage proposals and always have long term relationships.... A serial monogamist, yet then I married the man I knew for the shortest period of time! Am away at the mo, how are you Georgie??

cameron

@cameron

@LoraG It sounds as though you don't have many friends to take you out of yourself. We all need company and particularly so if our condition isolates us. I've lost quite a few friends (well, I thought they were friends) and if I start thinking about them, I end up feeling quite sad. But the ones who stuck with me are great and know how to cheer me up. Perhaps it's time to branch out a bit and cultivate a different circle of friends - easier said than done, I know. Do you have hobbies? The advice from S Hawking is good, but it only works (IMO) if you can replace what you've lost with something else. Could you do that? Thinking of you across the ether! xxx

lorag

@lorag

I'm sorry but I don't know what you guys are talking about sounds like you are having conversations with each other only. Do that in messages not on a post. It annoying when get notification that someone made a comment when it has nothing to do with the topic, really rude.

Monica2015

@Monica2015

Hi @george1234, sorry to hear that. What have you done??? Well, my husband was desperate to visit a Xmas market, like we did in Copenhagen, but in Germany this year. However, given I'm still on the lemtrada diet, my recent stomach infections and language barrier, I insisted we stay in England. So we are holed up in an exquisite and gorgeous hotel in Oxford, Chipping Norton. who have confirmed they can cater to all my strict dietary and hygiene requirements. Only an hour or so from London and found a local place to care for our pets. Hoping to continue to see sights and practice my walking..,xxx

Monica2015

@Monica2015

An not a

Stumbler

@Stumbler

@george1234 and @monica2015 , this is a very justified comment by @lorag . Hijacking someone's post, who has a valid issue, is rude, especially when the original poster (OP) is receiving e-mail notifications of every update. It's great to have a bit of flirtatious banter on the forum. It shows that we are still part of the human race, despite having this frustrating and restrictive medical condition. But, there is a time and place. So, don't stop it, just respect other members and their space. Thanks. :wink:

Monica2015

@Monica2015

Hi @stumbler, apologies. I did respond with comments twice relating to the post, but there was no reply to those. I hear you stumbler!?

Monica2015

@Monica2015

Hi @george1234, my thoughts exactly, but let it go for stumbler.... Hope all well! Xx

lorag

@lorag

George I said thanks not to the latest comments which was not in relation to my my post, but to the earlier posts.

reddivine

@reddivine

We could do with the ability to private message on here for stuff like that. i mean even if I (for instance) WANTED to get msg to george alone...for your eyes only type of thing.. The only way to do it is to put yr email out on the public forum.. What to do?