@lizelliott 

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lizelliott

Newly diagnosed with Primary Progressive

I am 62 years old and had in July this diagnosis. I t seems that every case/person is different but I would like to share with someone who also has primary progressive.I have no complaints about my doctors physios etc but just feel a bit isolated and also because I am older it does not seem to matter so much that I have this disease affecting my mobility etc. Liz .
@Stumbler

Hi @lizelliott and welcome. I'm the same age as you, but I'm Secondary Progressive since 2010, originally diagnosed in '97 although first symptom in '85. So, I've had a bit longer to try and get used to this. It's not so much a case of it doesn't seem to matter, there's not a lot they can do for us, except manage our symptoms to enable us to get on with life as best we can. In fact, my Neuro discharged me. It was a mutual decision. It was a pain for me to get up and see him and there was nothing he could do for me. MS can be isolating, but only as isolating as we allow it. We still have to make the effort, we are still the same person. We just have to put up with the blank looks, when people say, "Oh, MS!". You've done the right thing, reaching out here. We understand your feelings and your fears. We can empathise and advise. We can even arrange local get togethers, where we can put the world to rights.

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@watsoncraig

As @stumbler says "you are the same person". Your age doesn't come into it or matter (I'm 47 with a PPMS diagnosis 3 years ago). There is not a lot the medical profession can do for us, research yourself and keep well. Ask on here as the place is a good font of knowledge.

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