@larissajathomas

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larissajathomas

stem cell research treatment??

ive been thinking about after a year of having reaplse remitting multiple scherosis and i have been on teronfamide and i get my results about the drug has helped improve anything this august, i know its a big decision to want to sign up for stem cell research i wondered if anyone i could contact about signing up for the treatment ive looked into the effects and its looks very promising being young as well i am up and strong enough to handle the side effects to improve my quality of life i do anything so why not ?? i dont know how i can sign up through the nhs, or any websites sign up to essex or local to london anywhere in the south east basically. it would be great to know my options. thanks larissa any suggestions would be helpful or websites thanks so much !!

cherish

@cherish

http://www.sth.nhs.uk/autologous-haematopoietic-stem-cell-transplantation-for-multiple-sclerosis/ Dunno if this still on going or not. It's the only one I've noticed in last year or so. Lisa xx

TracyD

@TracyD

What is 'teronfamide'? a google search somes back with no results at all except this post ?

Stumbler

@Stumbler

It's actually Teriflunomide, also known as Aubagio:- https://www.mstrust.org.uk/a-z/aubagio-teriflunomide

larissajathomas

@larissajathomas

sorry my spelling isnt as good as it used to be thanks for the correct spelling thanks for the link its helped i am going to ask my neurologist for stem cell reserach referral to the kings college hospital in london :) & it will help me make a decision. thanks everyone x

Stumbler

@Stumbler

@larissajathomas , spellcheckers aren't that good with words like Teriflunomide! lol Good luck with your Neuro and the stem cell treatment.

Marc_Doucett

@Marc_Doucett

@larissajathomas, I recently went through this procedure in Canada. So far the results have been well worth the "challenging" procedure. If you have any questions, just ask. M.

BowLocks

@BowLocks

The criteria is quite strict for treatment on the NHS, but it is possible. http://multiple-sclerosis-research.blogspot.com/2016/01/london-ms-ahsct-collaborative-group.html There is also a facebook page, which you might find useful. https://www.facebook.com/groups/ukhsct/