@jessie88 

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jessie88

DMD Avonex advice pls!

Hi I injected myself on Monday for the first time with Avonex which was scary but not as bad as I thought it would b! The flu like symptoms came on at rapid pace on Mon eve so no sleep between the shivering & sweating but felt ok tues just headaches. I want to know what other people experiences of Avonex are? im worried as to whether when I inject again more of the same less or more Jess x
@janep

Hi @jessie88, first up, well done on getting through the scary first jab! I was on avonex for about 2 years and the side effects definitely wore off over time. I was lucky in that I generally just got headaches. The first one was definitely the worst as I hadn't taken any painkillers beforehand as the nurse thought it was a good idea to see what my 'baseline' reaction was. Plus, the first two jabs I did in the middle of the morning with the nurse and I soon switched to doing them in the evening. Most people seem to prefer the evening for avonex as they can then sleep through the worst of the side effects but I actually switched to first thing in the morning as I was always really groggy the next morning if I did it at night. So don't be afraid to try different things and see what works best for you. One thing I definitely noticed was that my headaches were definitely worse the next day if I didn't eat and drink enough- stay well fed and hydrated! Good luck and hope the shivers ease off quickly xx

@jessie88

Thanx janep for the advice good to hear someone else who's been there & tips! I did the same the ms nurse said I was unlikely to hav side effects 1st time so didnt take any tabs wont b making that mistake again! Still deciding wen to inject next wk like u say will be trial & error til u get it right