@jack97 

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jack97

Ocrevus infusion and coronavirus

Has anyone actually had Ocrevus infusion cancelled or delayed? MS trust talks about having the treatment delayed however after speaking to the appointments team at my hospital Monday I am still planned to receive treatment at beginning of April. The hospital talked about speaking to consultants due to the information on MS trust website and will aim to get back to me however have not yet. I was thinking about stoping this treatment anyway due to having bad anxiety and depression after each infusion (however it’s important to say am not 100% sure this is linked and everyone reacts differently) I was diagnosed in December 2017 at the age of 20 with RRMS and luckily no episodes since initial diagnosis . Am I been ungrateful for wanting to stop treatment and just see how my body reacts without treatment? as I feel well mentally and in my MS with the exception of the symptoms that are not reversible from my first and only relapse Thanks in advance everyone I feel I get better information on here than my MS nurses
@ItsMewithMS

There have been many recent posts on this- Use the magnifying glass in the upper left for great ones by Dominics- put in Corona and also COVID19. Within the last couple of days the advice has even been changed as you will note. Dr Boster has also put out a video on it: https://www.youtube.com/watch?v=_NpQOR7eXF8&t=354s I have a note in to my Neuro as well as we had our first confirmed case in my state (a half hour drive from me) and am due for my next infusion within a month...which is my first full infusion. So - a question in my mind too. No big concerns at this point but waiting for his advice-

@Highlander

@jack97 Hi and welcome to the club.... To be fair to your MS nurses they have to follow a set of guidelines written in the NICE guidelines. We on the other hand can openly talk about our own experience... So speaking for myself I would keep taking the DMT..... Your fairly young still and haven't had many problems so far..... again speaking for myself I'd be having it. I'm now rocking a wheelchair.. But I'm old what do I know.... Just my opinion. Wish you luck.