@hollylb10 

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hollylb10

In need of some positive thinking :)

Hi am new to this site and don't know what I am really doing :( I have not yet received a diagnosis , I have my first brain MRI this Saturday. I had a spinal MRI nearly a year ago after some leg symptoms that lasted around 6 weeks and nasuea and off balance that was diagnosed as vertigo by my GP. By the time I had the scan these symptoms had long disappeared and my scan was all clear. After discussions with my neurologist I decided to leave it at that and see if anything happened in the future, I agreed visits every 6 months just to make sure everything was ok. But around 12 months later just after christmas I suddenly had double vision and was in a bad way, I was so scared but MS never even crossed my mind. It was the orthoptist who finally told me that I had right internuclear ophthalmoplegia, she had to tell me quite a few times this was something neurological for it to sink in and I then cried when realisation hit me! It took me 5/6 weeks to recover and I had a patch on one of my lenses so I could try and get on with looking after my 2 children and working. I am really upset that it has taken this long to finally get a scan and I am terrified of the results, I know that I have MS but sometimes I forget. I haven't really decided what I will do after diagnosis, I hate taking any medication and have been thinking of trying to slow the progression down with diet and lifestyle change. I don't really hear of any positive stories so if anyone has any please share with me and give me some hope :) x
@KrisP

Hi holly I'm in a similar position to you ish I've had one attack I think with a range of symptoms, it is hard and I know the thoughts your going through, there's no knowing what it will or won't be, there are averages etc. the one thing that I can say is from reading online the medical profession has never taken as much of an interest in Ms as it is now, there are so many pharma companies trying to get a piece of the pie so to speak which is good news for all. Plus there are a range of treatments already on the market, you could also hold on to hope that yours so far sounds sensory which can be a good prognosis factor. Sorry I can't give any real expertise as im in a similar boat, but anything you need to ask I'll try help, my neuro reckons my knowledge of Ms etc is beyond some of his interns, Dr Google and me are best mates Kris

@KrisP

Ps regards to supplements Vitamin d3, b12 and omega 3 tend to be the General consensus Witt regards to good ideas Along with possibly biotin from what I'm reading, there's a phase II trial that showed improvement with this at huge doses, a little cant help