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@cherish 

Last reply

cherish

Goodmorning All :)

Hi everyone. I've thouroughly enjoyed reading your posts. But first and foremost I'm not on gilenya, I'm on extavia (beta-interferon 1-b) but when I punch it in on the interweb it comes back mostly as gilenya? Is there a similarity? I inject every 2nd day. I actually started on it last April but post bloods 3 months after my lft glut trans was at 720, I believe it's meant to be between 10-55 (approx), they asked if I was drinking excessively!!!! Hadn't touched alcholol in 2+ yrs. Then out of the blue my gallbladder ruptured and was rushed in for open surgery. Now the general surgeon blames the interferon for the raised glut trans but the neurologist blamed it on gallbladder disease. So as it goes I'm now back on it and just my 2nd injection been done. Dying to know if it was the interferon that was attacking my liver as my gallbladder can't be blamed now. Regardless, they arnt doing bloods for 12wks and I don't think they should leave it that long, I thought after 4wks they should just check the lft blood. Ps, trying to get my photo up so I don't seem ignorant but it's not happening, haha. Maybe it's bcoz I'm working off my mobile phone? Thanks all. Lisa, Aberdeen, Scotland, UK.
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@Stumbler
@Stumbler
 

@cherish , firstly, Extavia and Gilenya are two different drugs. With regards to the problems with your liver, I can see why you're concerned, Your Neuro seems happy to revert back to quarterly bloods, which is fairly standard for the interferon drugs. But, I'd have a word with your GP, as your Primary Care Provider. I'm sure they'd be happy to arrange a blood test at four weeks. I'll send you an e-mail about your photo. :wink:

@cherish
@cherish
 

Thanks Stumbler for both your advice with bloods and help with the pic. Il go give it a go :) Anyway, the time I was on interferon last year and newly now again I'm always asked even by Neuro.... 'Is it making you feel better?' and my response is always 'how would I know or anyone else come to that'. If it's designed to stop one out of three relapses then how could anyone possibly answer that, not even the patient living with the disease could. I had no side effects apart from the liver situ but I never felt unwell (liver ways)..... But boy this is such a complex disease. Everyday is a different story. I have optic neuritis atm but refuse the 3grm, 3 day doze of methylpredisolone. I hallucinate too badly :( Listen guys, thanks for making me feel welcome on the site. Hope you all have a nice weekend. Lisa :) xx