@Weef29 

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Weef29

Stopping Rebif early

Has anyone had any experience with stopping Rebif outright or do you need to wean off it? I'm not due back to my Neuro until 25th June and I know I'm going to come off Rebif because I just can't handle the side effects. I'm not the same person, I'm miserable, crying all the time, feeling very anxious and in constant physical discomfort on top of the mental side. I never used to feel this bad before I started in fact I was dealing quite well with the situation. I'm currently on holidays in Australia for a month and after 1 week I feel I'm not going to be able to relax and enjoy the trip if I don't come off this awful drug. Has anybody had experience stopping taking off their own bat or will it make things worse? My Neuro told me before that Gilenya will be the next step and actually he never wanted me to go on rebif in the first place it was only because I refused Tecfidera after reading some bad stories about the side effects that he put me on rebif. Thanks so much in advance.
@Stumbler

@weef29 , it's going to be difficult to consult your team, being on holiday in Australia. I don't believe that there are any problems in stopping Rebif, without a taper. You will need to brief yourself on the other Disease Modifying Therapies (DMTs) so that you can discuss alternatives when you update your MS Nurse on your return. The following is a good place to start :- https://support.mstrust.org.uk/file/store-pdfs/MS-Decisions-ALL.pdf Otherwise, get on and enjoy your holiday. :wink:

@Weef29

@nutshell88 did you find your mind calmed down once you finished up with the Rebif or is it still as bad? I'm worried that it's going to stay like this forever. I'm usually a positive happy sort, I've been down before but never anything this sinister. I just want to go back to myself again. I was diagnosed about 5 months before starting rebif and I was grand, I had accepted it and was feeling OK. Now MS is all I think about and worry about its so irritating!!!