@Sarah_Irwin 

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Sarah_Irwin

Pain increasing while on Tysabri

Hello, I have just had my 10th Tysabri infusion and have noticed the pain in my arms and legs has increased. The nurse asked me if i had any changes so i mentioned the pain. Two more nurses then asked me about it and told me to contact my MS nurse if it worsened. I am JC + and im now worried that it could be an early indication of PML. My walking is becoming a little worse aswell. I dont know if im being silly or not but if the staff hadnt asked a few times i wouldnt have given it a second thought. Im worried! Sarah x
@Stumbler

@sarah_irwin , the risk of PML only increases if there is an unacceptable increase in your JCV antibody titre levels. So, ask your MS Nurse about when they were last checked and could they be checked again. PML wouldn't suddenly jump up on you. The regular monitoring would prevent this. So, do try and chill out and speak to your MS Nurse. :wink:

@Gypsyrose

Hi Sarah How is the Tysabri infusion been for you as i think it might be the one i will be doing shortly. Must say it is a little scary to think this is going to be the new part of my life. What sort of precautions did you have to take.