How have all these people got better?
How of all these people got better with ms ?
If you can’t cure it and it’s progressive how have they gone into remission ? They can’t have all been misdiagnosed or been ‘mild’ or benign ms . And not all on drugs .
Stats say by 10-15 years go in from RRMS to Primary progressive . Some had been progressive and got out of the wheelchair . How do you explain that?
Rachael.x
Hello @rachaelloiuse, sometimes looking at the stats isn’t so helpful, given the individual pathway for each person. For example, at a recent appointment with my neuro, the person before me went practically skipping into the room at the age of 79. She has had a diagnosis spanning 40 years, way before the invention of any DMD. Yes it’s progressive, but when you think about it, so is life for everyone! Another example; I feel 100 pc better than this time last year following my first relapse. This has been achieved through regular small exercise, diet and working on my emotional agility. There are some claims that people have gotten out of a wheelchair. Hopefully, we we will be hearing more and more examples of improved fortunes as the medications improved. Although Ocrevus, the first ever ever DMD for PP and RRMS is thought to slow progression, I have been reading accounts of people overseas feeling some improvements too. I guarantee there will follow an enormous surge of activity around developing drugs like this because the major drum companies will compete against each other in the cut throat world of the Pharmaceuticals. You, me and all the other Warriors here must continue to be realistic, but also remember that hope springs eternal xx
Sorry, I meant drug companies, not drum companies! That would be funny, bang band bang!