@Peggy7

Last reply

Peggy7

Wedding

Hi all, I rarely say anything on here but I am getting a little nervous instead of being excited. It’s my son’s wedding on the 8th August (30 guests only) it’s being held in a stunning listed property, the problem is I have Secondary Progressive MS and the toilets are downstairs with no lifts, I have a weak bladder and starting to ‘PANIC’! Any suggestions in how I can deal with this? Thanks from a very anxious Tracie xx

Stumbler

@Stumbler

@peggy7 , have you contacted the venue about this issue? They might have an option available for you. They are obliged, under the Equality Act 2010, to ensure that their facilities are accessible to all.

ItsMewithMS

@ItsMewithMS

It may be worth a call to the site and ask them how they accommodate to stay within the law. I know in the US there are some exclusions to the accessibility laws but most venues have found a way to accommodate all. I've never tried alternatives like "go girl" urination device. Maybe an alternative if there is a private place? My husband has UC so was very nervous about starting the building process on property we had bought before we could even have a "porta potty" delivered but found a device they sell for camping for people to take backwoods. Basically just a fancy bucket with a lid like a toilet where you could just haul it out. It worked for the initial weeks until we got to the point that we had a driveway in and a porta potty could be delivered for use...not the best option but it served it's purpose! There is always a way!

Peggy7

@Peggy7

Thank you @stumbler & @itsmewithms for your advice I will give them a call tomorrow.

Ralee

@Ralee

Worst case scenario with no other solution. Buy a camping toilet with a pop up changing tent. Put it somewhere discreetly in the building where u can get to it if needed?

wildscientist

@wildscientist

Ask your MS nurse or GP if there is any chance of an in-dwelling catheter just for a few days. They are just like a normal intermittent catheter, but with a bag that collects the urine and they stay in place. Worth a try.

samanthataggskycom

@samanthataggskycom

Does your son know that you have bladder issues? X

Peggy7

@Peggy7

Thanks all it’s got me thinking and unfortunately my son doesn’t know I have bladder problems😕 xx

Stumbler

@Stumbler

@peggy7 , Looking to the future, there is both drug and non-drug solutions which might make this problem more manageable for you. Chat with your MS nurse in the first instance.

Stumbler

@Stumbler

@peggy7 , your son hasn't been affected by yesterday's change in the Pandemic guidance, has he?