New Member This Is Me
hi everyone
just a quick hello,and introduction
im paddy from manchester uk
symptoms started july 18, strange pins and needles under small toe
by november it had spread to both legs, and both arms,and ended up in a wheelchair
after 8 months of mis-diagnosis,and endless scans etc
finally had a appointment with neurology, sent to salford royal same day
after 3 weeks of MRI's, bloods tests ,lumbar puncture, 3 day iv steroids ,plasma exchange
they said i had Transverse Myelitis and relapsing remitting MS
since leaving hospital (3 weeks ago) i have not been seen by nobody,kind of being left in limbo, feels like nothing has changed,still cant move below waist, and feels like i have sausages instead of fingers
take care
paddy
Hey there paddy, this is a late night response from West Coast US.... hang in there. You've been through the ringer. It can take time to get things sorted out once you have been diagnosed. I waited about 4 months to get on treatment between choosing one, talkng to the doc about it and getting in the treatment pipeline. I never knew if they were thinking about me or not. Members in the UK will know a lot more about what is available to you over there. But stay connected with your care team however you're supposed to, and try not to feel too neglected - it just takes time. In the meantime be good to yourself. Sending peaceful thoughts, R
hi sfrox good morning from sunny manchester thanks for your kind words and thoughts take care paddy