@KeepSmyelin99 

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KeepSmyelin99

Another question! Starting treatment.

I seem to be posting a lot recently but everything is starting to come together in my head now! I have my first appointment next week with a specialist MS Neurologist and the nurse. I have a list of questions and topics I want to discuss with them, but the main thing I want to be prepared for are their suggestions of treatments. So I’d like to know what the first DMT was that people were offered/told to consider? I have RRMS and my main problem at the minute is balance and walking (probably not helped by the fact that I injured myself due to trying to do too much!). The only other symptom I can think of that could possibly have a big effect on my day-to-day life at the moment is occasional vertigo (but I haven’t experienced that in the last month). What do you think they are likely to suggest to me? I want to research things so I can try a DMT as soon as possible. I finished a 5-day-course of methylprednisolone the other day and that is the only thing that I’ve taken so far. Any info about the most likely things they will suggest would be greatly appreciated folks! Thanks in advance 😉
@NinaCeee

Hey I started copaxone for my first treatment out of choice, i thought I was going to pick tecfidra but then after speaking to my nurse it seemed I would experience some flushing, and stomach problems from the pills and just a little bit of a reaction from the injections. So I went with injections and I’ve had no side effects just the site reactions which can be a bit of a bitch for an hour but nothing unbearable. I didn’t like the thought of flushes because I’m a hot person or stomach problems. I can still drink have a good time whilst taking this medication and it doesn’t interact with other drugs as I have a type of chrons too. I’ve not been put onto brabio but it’s same as copaxone just different manufacturer. Some you may not be eligible for either. I also had same symptoms as you and I haven’t had another relapse yet. I think it’s trial and error. Hope this helps in some way x

@Stumbler

@keepsmyelin99 , a lot depends on your Neurologist. The latest philosophy is to hit MS hard and fast with the most powerful Disease Modify Therapies (DMTs). But, you may have a traditional Neurologist who believes in starting with entry-level DMTs until you progress, then stepping up treatment, as you accumulate more damage. It's best to do your own research and be prepared to argue your corner. The following may help you :- https://support.mstrust.org.uk/file/DMD-Book-Final-WEB.pdf