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@Henks 

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Henks

MRI results after 1 year on Rebif (44 mcg)

Hi guys! I don't post much, but I'm always reading! I thought I'd share my most recent experience with MS. Yesterday I had a MRI and met with my doc after to review the scans and do physical tests/blood tests. This MRI was one-year since staring Rebif (44 mcg). I've never missed a shot and haven't had any new exacerbations, so really, I've been feeling really good/positive! Turns out, my MRI showed two, possibly three new lesions (in addition to the others/black holes). My doc thinks its best that they monitor me with MRI every 6 months instead of annually. There was a short period of just over a month from my last MRI (late November '12) the time I began therapy (early January '12) so the lesions could have been from before meds but there's no way in knowing. Has anyone else gotten lesions after a year (or more) on therapy? Did you switch therapies?
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@cameron
@cameron
 

I'm afraid here in the cash-strapped UK, neuros don't do MRIs very frequently! I haven't had one since dx ten years ago!

@Aoife
@Aoife
 

I was on betaferon over a year. All seemed to be going well and a few months into the treatment I had an MRI which showed nothing new, in fact some of the lesions that were there on my initial scan had disappeared. 7 months after that I had a scan done privately, (I had decided to go abroad and see a specialist in New York and needed a more recent scan for him). This scan showed two active lesions, which meant the treatment I had been using wasn't working. A blood test to see if I had built up a tolerance to the meds confirmed that they were no longer working for me. Having discussed my options with the specialist in New York and also my Neuro here, I decided to switch to Tysabri, just for a year to stabilize my condition and then switch back to something that doesn't carry the PML risk (I am JCV positive). So far so good on the Tysabri! Like you I will be having MRI scans more frequently. Best of luck with decisions :)