@Galina

EditedLast reply

Galina

Ocrevus?

Hi! Does anyone has experience with Ocrevus? Tested for PPMS since 2018. No treatment so far, doctors observing dynamic. It seems that decision about ocrevus coming soon, and of course, I'm a little bit nervous...

fuzzy9

@fuzzy9

I was recently diagnosed PPMS and I am currently on Ocrevus medication. My last shot was 3 months ago. So far I have not faced any issued with ocrevus. I recommend you to take the medicine since it is the only best option for PPMS.

1

watsoncraig

@watsoncraig

Hi, I live with PPMS and am on Ocrevus. Not had any side effects and await my next MRI to see if it is slowing the progression. No other benefits yet, but has only been a year

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SueH

@SueH

Hi, I am also on Ocrevus. I had my first double infusion in July. I’ve had no side effects at all.

1

Galina

@Galina

Thank you all for encouraging messages! Trying to convince myself that it is really the only option for PPMS and that I have to start with it. But still working fulltime and walking quite a long distances. No balance, fatigue, trembling legs... But still I am fine. 🤔 And of course, thinking about future...