@Fi70

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Fi70

strange symptoms

Yesterday I had the strangest symptoms, I was talking to someone when I experienced a sudden head rush/ tingling and my bottom jaw started twitching uncontrollably and I wouldn't finish my sentence, followed by a weak feeling rushing down my arms, after wards I was really shaky with an elevated blood pressure/ pulse and generally off kilter. I went to my doctor immediately but they had no diagnosis other than an MS relapse and have put me on a massive steroid dose. I know that no medical diagnosis can be provided on this site but I wonder if anyone has experience anything similar

Stumbler

@Stumbler

@fi70 , I don't believe that a standard GP would be best placed to determine what is an MS relapse. I do hope he performed the usual checks, e.g. blood pressure. What dosage of steroids did they put you on and for how long?

Fi70

@Fi70

I had my blood pressure measured at work by our nurse so the doc didn't do it again, he did a variety of test checking my retinas, reflex and strength test. I am on 500 mg per day for 5 days. I do find it slightly frustrating that many symptoms are always put down to MS, to be honest at the time of this attack I thought I might be having a stroke which has left me feeling pretty anxious, but I did see my GP within about an hour and a half of the inccident so have to have faith that if anything more sinister was the cause they would have sent me to hospital. I have lived with MS for over 10 years and have experienced many unusual episodes which may mot be considered classic MS symptoms but because it is different for all MSs it is difficult to know

Stumbler

@Stumbler

@fi70 , it doesn't sound much like a relapse, does it? So, how are your feeling today? Any repeat of those symptoms from yesterday? Your Doctor has prescribed the usual level of dosage to address a relapse, so they must know a bit about MS.

cameron

@cameron

Can't offer any advice but I send many, many big hugs. You've had a horrible experience which I expect rocked you to the core. I hope you're adding a good dose of red wine and chocolate to your steroids. xx

Fi70

@Fi70

No not really, although I had a relapse in 2010 which started with a very sudden strange episode affecting my vision but issues with vision are far more in line with MS. I should be used to unexplained symptoms by now and in the main I try not to worry too much, but this last event has really alarmed me. my doctor checked my previous treatment prior to prescribing this course of steroids

Fi70

@Fi70

Hi Cameron thanks for your kind words, I think I will treat myself to a glass of wine this evening it might help my muscles relax, my jaw and head are feeling pretty tight. I am guessing it's because I am feeling stressed

Stumbler

@Stumbler

@fi70 , here's a definition of an MS relapse:- https://www.mssociety.org.uk/what-is-ms/types-of-ms/relapsing-remitting-rrms Does this fit with what happened to you?

Sonia1984

@Sonia1984

I had an incident when I was in my twenties. I had insane tingling at the top of my head which then turned cold. I started to have a panic attack out of nowhere felt like I was in the beginnings of a stroke but now realize it was probably my ms peeking out. The worse part of the attack was when I was trying to breath and relax myself , I literally could not see everything went black for a few seconds but I could communicate and was still conscious. I felt weird for a few days with random panic attacks, tingling and coldness then felt better suddenly. Definitely check and make sure everything else has been ruled out but ms can cause the weirdest symptoms.

crossy69

@crossy69

Hi, this is my first post, I was diagnosed with r&r MS back in 2011 and for the last 5 years have been pretty lucky with fatigue being my only enemy, I've not had to miss a days work in all that time, until last Tuesday when it reared its ugly head, I got up to go in the kitchen,my son who was in there, was speaking to me when everything went into slow motion, numbness went up my left leg and arm, and I was struggling to get my words out,I went back into the lounge, my partner could see something was wrong, I think we both thought it was a stroke, I sat down and the symptoms stabilised but my heart was pounding and I was full of anxiety, l had a couple more episodes in quick succession so we went to A&E, had an ECG, blood tests,reflex and strength tests, a stroke was ruled out and the doctor concluded that this was probably my first relapse since being diagnosed and was sent home, since then I have had 7or 8 more episodes, always when I'm stood up, a rush of numbness up my left side, which always resides when I sit or lay down, it leaves me with a buzzing arm and leg a foggy head and tingly fingers and tiredness, I have spoke to my GP and MS nurse who confirm it is a relapse and have given me a sick note for 6 weeks off and to just rest and relax and monitor the situation. It has definitely scared me, but I now know what to expect, I think the triggers were possibly overworking, lack of sleep and what I thought was a trapped nerve, but who knows?

Stumbler

@Stumbler

Hi @crossy69 , so this has all been happening over the space of a few days? You may find that L'Hermittes Sign (https://www.mstrust.org.uk/a-z/lhermittes-sign) may be involved in what's going on. But overwork and lack of sleep are never a good recipe. You are probably well run down and over-stressed. MS has a way of teaching us lessons!

crossy69

@crossy69

Hi, yes the symptoms have been on and off now for eleven days, that's an interesting link you've sent, I've never heard of it before!. I have had the electric shock type pain in my neck a number of times before but not recently, the feeling I'm getting now is actually not painful, it's more like a rush up my left side that feels almost like it's going to be a paralysis if I was to stay stood up, once I lay down the symptoms ease after a just a few minutes.

Stumbler

@Stumbler

@crossy69, just be aware of dropping your head down towards your chest and see if you can control this. :wink:

crossy69

@crossy69

I will give it a go, thanks for your advice, to be honest the settee and armchair in the lounge aren't great for posture, we'll have to get something better,cheers!

Fi70

@Fi70

Thanks for the reply Orlando27 they did check my retinas, reflexes etc so it was quite a thourgh exam but also a quick diagnosis to decide it was a relapse given I only experienced these symptoms for the first time an hour before, but on the other hand with previous relapses I have gone weeks without treatment and it has dragged on. What I experienced was not a typical MS symptoms but this condition can affect us all so differently that it can't be ruled out, I just need to try and stop thinking about it, but it has gotten me in quite a panicked and I do tend to have health anxiety when my MS flares up