@Camilla_Foster 

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Camilla_Foster

MRI follow up/ neurology appointment

Hi guys, so I had my first follow up appointment today to discuss my MRI results, and my diagnoses in general. My neurologist has said that it's quite uncommon for someone with suspected MS as young as me (26) to have motor and bladder problems, he seemed to be suggesting I had it quite severe. I just wanted to come on and see if anyone else has experienced similar/ has similar symptoms? I got to view my scans and I have a lot of lesions on my cervical spine, this new info is scary and it does make me nervous about my future.
@Julia_Rahn

I had motor and bladder problems and was diagnosed in 2002 with RRMS. I was 24. Don’t let this get you down(I know it’s hard). I tried a few of the MS meds, Avonex, Copaxone, Tysabri, and now Rituxan. I’m 40 now, still walking and talking and living life. When I was first diagnosed, I had severe depression and assumed my life was over. That couldn’t be farther from the truth. Though I am no longer able to work due to severe Fatigue and brain fog, my life isn’t what I envisioned, but, I’ve made lemonade out of the lemons life handed me. Days aren’t easy but I still consider everyday I open my eyes, a great day. Even though things didn’t work out as I envisioned, my life is full and I feel so grateful to have been diagnosed and change the way I was living before my diagnosis.

@Isidora

@julia_rahn Before I could even respond to Camilla, I saw your comment and almost cried (that good-everything is going to be alright-cry). I felt the same when I was first diagnosed at 20 years old. It felt like my world was crashing before it even started. After a few months, here I am nearly two years later tolerating Tysabri pretty well and beginning to look up and ahead again. Conquering my fears everyday is something that I will live with forever. I've become friends with the unknown and let it fuel my motivation for a healthy life. I'm glad there are people out there who can share stories like your own, nearly twenty years later after diagnosed and doing well. I'm very happy for you. Keep up the blessed positive perspective, it makes all the difference. Best, Gina @camilla_foster I am 22, I know how scary it is at such a young age to go through what we endure. As scary as it can be, I find it helpful to not let my mind dwell on it- It's something that we can live with just a bit differently. Yoga has helped calm my nerves and staying occupied like any other busy twenty year old young girl with school, work, friends ect. I have not experienced extreme motor problems or bladder problems but I do have headaches occasionally under stress so I try to limit stressors as much as I can. You can discuss changing medications if you feel your symptoms are worsening. While being on Tysabri, I haven't had any new or worsening lesions. My next MRI is in June so I will see! Best, Gina