@AdeleCB 

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AdeleCB

Pretesting for lemtrada

Hi all, Hope you are all ok this hot summer? I am awaiting for a date for lemtrada. Have already had s blood test and go back on the 19th of this month. Not sure what for. What does the prescreening/pretesting involve? I am with Addenbrookes. Thanks for all your support xxxx
@JFP16

Hi, I had first Lemtrada treatment 7 days ago. The prescreening tests involved blood tests mostly and urine samples. I hospital urine test morning of each of the 5 days. I had a cannula in for all five days as it didn't fail. Now I have first appointment with MS nurse booked three weeks time for bloods and possibly urine sample. I'm taking two antibacterial tablets everyday for one month after Lemtrada. I hope this helps. For me mostly bloods. I'm at the National. All best J

@TraceyP

Hi @adelecb, how are you doing? I was only thinking this morning that I wondered if you'd heard yet about your date, guess that answers that!? hope they don't keep you waiting too much longer - can't believe mines starting a week tomorrow - getting really nervous now but am also really suffering with some more symptoms at the minute so in other ways I'm glad its soon to get on with it. Other than blood tests I haven't had any other tests so far - I did ask Mary the nurse if I'd be getting another MRI as I've had at least one possibly two relapses since my last one so thought relying on that wouldnt be very helpful as I'm sure there would be new lesions by bow but she said no, they don't rely too heavily on the MRIs for judging effectiveness. I've got an appointment this coming Friday so I guess they might do some more tests then but no idea what! Fingers crossed you hear soon (surely it can't be too much longer now!) and you're doing ok xx