Hello everyone. I just wanted to say hello and maybe get any useful info from anyone who may have had similar experiences.
Firstly I want to point out that I am not suffering badly and am well aware that I am more fortunate than many so really don't want any sympathy, just thought my story might be of interest and some might be able to relate to.
I am 43; a father, a professional and generally have been healthy throughout my life. I had always just thought I was incredibly clumsy and found it almost funny that I frequently stumbled and couldn't tie my shoelaces without nearly falling flat on my face.
Then earlier this year I woke up with pretty severe double vision. Again, MS was the furthest thing from my mind, I thought I had maybe had too much screen time. Covid19 has left me working from home since march so I had been working long days. After seeing an opthalmologist with no diagnosis I had an MRI scan and was eventually advised I might have MS but to wait for an appointment with a neurologist. Again, Covid19 played a part in my story and due to the NHS being so busy I heard nothing. After 8 weeks with no contact, I decided to take advantage of my private healthcare plan and was able to see a neurologist privately and received my official diagnosis within a week. Interestingly, an MRI scan I had in 2011 prior to some mastoid surgery also showed lesions but they were missed.
Suddenly many things make sense; my clumsiness, numbness on the left side of my body (always thought this was sciatica or similar), poor hand/eye coordination (sometimes), insomnia.
I guess I have endless questions but the obvious ones are things like...
Is it likely to get much worse?
Do I talk to my employer?
Will medication help with symptoms?
If you have made it to the end of my long post, thank you for taking the time to read it. I really look forward to reading anyone else's stories and any advice, tips or experiences you lovely people may have. Thank you.