@elliesmith , it seems that the Varicella vaccine is a live vaccine so there is always the risk that our MS will “play up”. This is due to the vaccine activating our compromised immune system, which causes our MS to flare up.
This should be a “pseudo-exacerbation” so should return to your normal once the vaccine is accepted by your immune system.…[Read more]
Found this article from footnote (50)
Beginning of the end of two-stage theory
purporting that inflammation then degeneration
explains pathogenesis of progressive multiple
@sylvia_sparkle , you’ll regain your sense of perspective. Just be patient with yourself.
Steroids aren’t a quick fix. Primarily, they will address the inflammation on your Central Nervous System (CNS) that has caused the relapse. This will then allow your recovery to take place. The Steroids will be helping this recovery over the following 6 to…[Read more]
So I had the varicella vaccine 5weeks ago and the previous on 6weeks before that.
Well first dose was okay. Definitely had a small flare of symptoms a few days.
But second time round. Straight away very unwell. (The nurse isbbejgn very careful as to what she’s saying so that really worries me that they’re just pushing towards starting the next…[Read more]
Yes it is shit but you will get over it! I’m an old codger, have had the beast for 25 years, couple of relapses a year, on Tecfidera now after 23 years on Avonex but things will get better. I was on my feet for 24 years, was told the rrms would become spms in 10-15 years,it took 23 so I’m not complaining. Only now need some help with walking and…[Read more]
So had what I consider my first proper Relapse, course of steroids I still feel dizzy and have this dazed feeling. just not myself.
Actually feels pretty scary like it’s hit home this could be the rest of my like unbalanced etc.
Work is doing the best they can but when you’re job is caring for other people at the moment I don’t feel comfortable…[Read more]
@grandma. the NHS always takes its time to implement anything. It’s the nature of the beast!
It’s OK Sajid Javid announcing that it will be available, but he doesn’t have to manage the logistics.
Here’s what I use for Vitamin D :-
£12.97 for a year’s supply ain’ t bad………
thank you for all your replies!
I am going to have the coil removed. it helps with the MS symptoms but it is messing with what little mental health I have haha. going to try a different hormonal contraception to try and keep estrogen and progesterone at a more steady level. worth a shot anyway!
good to know I am not alone!
been using this stuff now for a month
and before that
https://www.tesco.com/groceries/en-GB/products/276209464 or Deans equivalent
Saw my ms nurse this morning. Apparently I’m not the only one who has asked about this since the news broke about the government legalising it for ‘medical’ purposes ‘quel surprise’ She said they have no access and no-one will talk to them about it, apparently they are hit with a brick wall at every turn. Thought it was too good to be true. Should…[Read more]
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