revently I’ve bern sleeping from 4 to 6 hrs a day
and still go to supermarkets shoppong mall and work
I feel my body is so stressed with jello legs
I can still walk
not as nalanced or strighy requiers an efgort just this week
today is my MRI scan
been waiting for it since 2016
I feel optimistic about the resulbut cant be so sure with MS
Hello I was just diagnosed in June of this year. I know exactly how you are feeling. The anxiety alone can cause a lot of strange body sensations too, so keep that in mind. Just know that your not alone in this. You will be ok.
Thanks for sharing xx I am due to start lemtrada in september and super excited/scared (not even sure how I feel about it) so it’s good to hear that it goes well for you xxx
Absolutely love kind people! They make such a difference in your day/life. That is how I go through life. With kindness and compassion ☺
All the best!
Than you @glasdan & @Stumbler
I have found at Work that timing my focus tasks for my morning is more successful as well . I think I might start paying a little more attention to when I feel sharpest to take advantage of it.
Re configuration of everything else sounds a little daunting 😬.
Do you have any suggestions for pulling the brain back on…[Read more]
@macca1975 thanks very helpful advice especially about the medical card.I am on illness benefit..I emailed the Gp this morning as I had so much pain asking her for a letter for the a&e if things got worse will definitely mention iv steroids if she replies. have had awful experiences with a&e
I went to one early May with numb feet my hands were…[Read more]
@maura nerve pain is a bad thing,luckily mine went away after steroids but my hand is bit weaker. Amitripiline neuro suggested for nerve pain but I didn’t need it after all. He gave me baclofen,a muscle relaxant to ease the stiffness in my hand. Yea definitely gets worse at night. Same as my gp,takes ages to get in. He gave me low dose steroids…[Read more]
@maura…. make sure you sign for illness benefit straight away if you haven’t already. It won’t be near what you get I’m sure on wages but better than nothing. I see you have been in a&e twice, I was going to suggest if you were there again, to see if you could see the on call neurologist and ask there and then if there is a possibility that…[Read more]
@pastglory thank you so much I am going to chase the results again tomorrow and ring Neuro secretary to mention the pain.Were you on anything for Nerve pain?? this is burning pain in my hands worse at night or when you move them any activity..Gp is not much help only Gp in surgery impossible to get appointment and was away for last 2weeks I am…[Read more]
@maura I was in hospital for 2 weeks as they didn’t know what I had. After ms was confirmed I stayed in hospital for the 5 days and got physio too. Now when I get iv steroids I just go to day ward for 2 hours in the morning and then go home. Sorry to hear you are in pain,if it’s a relapse it will ease off slowly. Steroids just speed up the…[Read more]
That is so frustrating that they don’t pass the results when they say they should. Keep phoning, morning and afternoon til they send it. You shouldn’t have to but unfortunately it’s what we need to do here to try to get things done. If they fob you off with an e cause make sure they’re aware that you are in sever pain and can’t get treatment…[Read more]
I transferred to a neuro near me (same town, rather than 45 min – 1 hour into the city). My lymphocyt count has always been low, this didn’t concern my doctors at the UCSF MS Center. New doctor is older, and I am not receiving my Glyenya (and haven’t for about 7 weeks), and I am getting concerned about MS progression while I’m waiting for this…[Read more]
Just saw this post @maura I hope you get answers this week as it can be worrying. I had numb feet and hands a few weeks ago, I could barely walk. Rang my neuro and a few days later sent for cervical and brain mri. Got appointment to see him next month but like you my legs are still at me and so is my hand. Keep cool as im finding this hot weather…[Read more]
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