I’m Diabetic as well as having SPMS so I know all about the importance of changing injection sites to avoid getting the darn lumps and bumps.
The lumps are caused by injecting in to an area previously used, avoid this by moving the injection site a few inches away from the previous one or even better choose a…[Read more]
Hi – no, mine stayed exactly the same & they aren’t really supposed to change so that is a bit weird! If you are struggling with your ms nurse maybe go to your gp – depends on your relationship with gp, but mine is better than the nurses for side effects so don’t dismiss them if you’ve got something unusual
I was on Copaxone for about 6 years, and had big red lumps nearly all the time. I had to switch to Avonex in the end, as I had atrophy at all the injection sites.
Copaxone is attractive from the point of view of side-effects – if you can tolerate the injection reactions. On the other hand, there are more effective treatments these days without…[Read more]
@mamawals It has been a busy two years to be sure.
@stumbler “has anything really changed”… I think the main thing is I am more active and energized to get things done. I don’t want to sit on the couch and watch TV while I can still walk… I don’t want to walk when I can still run. I want to make the most of what I have now as there is a…[Read more]
I’ve had bern on rebef and its been painfully unbearable Its similar to your treatment.
I’ve been on it for a year or teo lost loads of weight on my thighs or maybe its the MS.
For now stick to that im not sure if putting ice on it is allowed or would even help.
Thank you, @grandma. That is pretty much my strategy with avonex too, but unfortunately it hangs around for the best part of the next day too.
I know a lot of people like Tecfidera, and I may consider it if I can’t put up with Plegridy. I was just thinking that it may be better to stay on a slightly different formulation of the same drug if…[Read more]
I was on Rebif for 5 years and had the same goose egg lumps that got infected. I had to inject only in my arm and my stomach. I started having problems with the fluid going into the layer of fat. Fortunately Tecfidera was on the market and I switched to it. I have been on it for 6 years. I have had only one relapse and I believe it was…[Read more]
@cammo, I was lucky to have MRI’s every 4 months up to now, like you said it’s nice to know what’s going on. I usually only have the head and neck done. I did have the thorax spine done a few years ago. Do you have the whole spine done every time?
@tibs74 thanks for that info. when I was on Tysabri I was very concerned about PML but at least I was having regular JC virus checks. When I moved to Gilenya these stopped but I was happy I was having regular MRI’s. Now that these have changed to a year I am concerned. I will bring it up at next appointment. It’s all so confusing and exh…[Read more]
@lindsey_cotherman yes I couldn’t drive for months from Sept 2017-Dec 2017 I would literally see the cars in the other lane coming straight towards me. Thankfully my double vision now only comes when I over every myself or if I’m overheated. I go to physical therapy to work on building my endurance and balance back up.
- Load More