@watsoncraig 

Last reply

watsoncraig

Medical terms

MS has taken so much from me it has me wondering where I am. My Drs. gave my symptoms names such as dysphasia, diplopia, dysarthria and ataxia. I am in no way medical so these terms don’t mean much to me so Google was called upon. Not Dr Google,as that can be dangerous. I now know that dysphasia is when you have swallowing issues, diplopia is double vision, dysarthria is speech issues and ataxia can be poor gait or come across as general clumsiness. There exists treatments for most things that can provide assistance but not cure them, so we find our own ways to deal with them. Is it not obvious to the medical fraternity that we don’t know what these medical terms mean in the same way as if an astrophysicist was to try and explain propulsion. It would be so beneficial to us to be told that dysarthria is the “posh” name for any speech issue we could experience and my poor balance and gait is called ataxia, or as the Dr puts it “I am ataxic”. It’s hard enough living with (not suffering) this without trying to understand medical terms. We might not recognise you or remember your name but that can be Cogfog (cloudiness of cognition) or you are just not memorable, not that I am stupid.
@Lowlander

I suffer with clonus, Tetraplegia, a wonky eye not been given a designated name yet. Plus almost everything you mentioned. And I guarantee you another doctor will probably give you a whole load of other things but won't explain any of them cos their special.

@Scout31247

I have had MS for 16 years I have tried it all, I spoke to the new neurologist and had to explain MS hug to her and she was one of my favorites that MS doesn’t cause pain…I just want them to have a week in my skin and see how it feels.

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