@valerieLagomm 

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valerieLagomm

1-year diagnosis anniversary 🎂

Happy Birthday to my MS! It's been a year since I was first diagnosed, after a relapse that affected my balance and vision. Since then there have been ups and downs (lately mostly downs, stress related), and I am meeting with my neuro this afternoon. I don't have a treatment yet and I struggle with that thoughts. I wondered how long it took for you to start a treatment? My neuro is very involved in MS in France, I recently watched a conference he gave around MS treatment options, and he mentioned the fact that regarding treatment, starting within a year of diagnosis was the best options to manage the disease evolution. My mom has a friend that was diagnosed 30years ago, and that friend was telling my mom that starting medication was not so important. I'd like to be the only judge (with my neuro of that) I'd like to hear your thought on something : do you sometime feel "not sick enough" to ask for something? The invisible aspect of MS is difficult for me because I am afraid of "creating it myself" (== somatic reaction) or being an attention seeker. I strongly believe that I am not hypocondriac, but it feel stupid for complaining for "simple things". Lately my right side is weak, I have difficulties to write and type, and my brain is weird (cannot concentrate or process heavy tasks I usually enjoy tackling). It is nothing compare to others, I know that, but it impacts my life. Anyway, I just joined this website and I am so glad to read other MS stories. I look forward discussing with you all! That's the end of a super messy first post, coming to you from the south of France! (pardon my french) Val
@AndreaG

My advice is to get on treatment sooner rather than later. The longer you leave it, the more damage is done. I went for six years without any drugs and I wish they had acted sooner.

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@Nikkibrads

Hi the inly thing I'm on is Gabbapentin for nerve pain, amatryptaline muscle relaxer for sleeping, amantadine for fatigue . So I feel like one is to keep me awake the other to make me sleep.. I do live in a total brain fog, dizziness is a daily occurance most of the time, that is making me exhausted before I start... I was diagnosed 20 years ago so I do feel that my ms is just how I must feel normaly, over the past few years my mobility has been hit, my legs just do not want to worm if I do just a little to much, that's it have to sit down before I fall down. Been to docs not seen neuro for years, but have yearly MS nurse phone appointments, but nothing has changed meds wise for years... so I just get on with it and stop when I need to, luckily I don't work any more so I'm home . Good luck with every thing , you will be fine x

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