Tecfidera - 7 month wait
Hello. My neurologist has recommended I swap to Tecfidera (been on Betaferon for 13 months but it's not working very well). I've just been told I have to wait 7 months to see the MS nurse to talk about the drug and will get it a month after that. Apparently there is a long waiting list for it. 7 months seems like a long time and I just wondered if this was usual? Has anyone else waited this kind of time? Thanks
Hi @slockha2 . I do hope there isn't a waiting list for Tecfidera. Just think of all the MSers that are presently taking it - I do hope there are supplies available for them! I'd contact your MS Nurse now to discuss this. If the Betaferon isn't working, then you really want a treatment straightaway that may be more effective. There's a school of thought in the medical profession that believes that you should treat MS with the most effective treatments at the outset - why risk acquiring disability whilst taking treatments which only have a 30-50% success rate. Do your own research into what's available. This booklet will explain the present treatments, http://support.mstrust.org.uk/file/MSDecisionsWeb.pdf . Then ask for the treatment that fits best with you.
Thanks @stumbler, will call the MS nurses and see what they say! I did talk to the neurologist about Lemtrada but he didn't think it was appropriate :(