@shelbie 

Last reply

shelbie

Changing treatment

Hi I wondered if anyone could tell me their experiences with tecfidera about to change from copoxone to tecfidera due to new lesions and having a relapse plus so sore from the injections big dips in legs tummy etc... heard about the side effects just wondered is this short term or do they last while ms nurse said its quite the hurdle to get over at the start.
@Lowlander

@shelbie Hi I've been using Tec for about 4yrs now. The best month I had the runs every now and again but it all calmed down after that. Take first thing in the morning before breakfast, then just before evening meal. As your nurse says push on with them at the start. The should be delivered to your house. You start of on a lower dose and then go on the full dose after a couple of weeks. Hope you get on with it ok.

@Ragamuf63

Hello Shelbie, I have been part of the Tecfidera clinical trial since 2008. Apart from the initial symptoms of the body getting used to it, the only symptom I get is the flushing of the whole body. It is inconsistent and no way you can predict it. It can happen during the day or whilst you sleep. Sometimes it is 2-3 times a month, sometimes I have no flushing for months. As the benefits of the drug have been amazing, I consider it a minor symptom. I finish my clinical trial this month and the drug is not available/price prohibitive, here in South Africa. Panic stations because I was in a bad way when I started the clinical trial. I have only had 3 relapses since 2008, I no longer use the walking stick and manage the MS much better than I used to and it is because of Tecfidera. I think it will be a good move. Warm regards, Cheryl