@selma1 

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selma1

my diagnosis story because i feel like sharing it

hi everyoneee it all started in 2020 october, november, december and january- march 2021. i had extreme pain in my ribs but it started on my right side whenever i’d eat junk food or breathe incense sticks weirdly enough. this spread to my left ribs and it got sm worse over the months they originally thought it was gallstones ??? then thought it was stomach ulcers then gallstones again then it was like “oh you should see a gastroenterologist” then i’d get pushed away from A&E. my pain stopped for about week but then my left foot went all tingly which was incredibly disgusting i’ll be honest has got to be one of my worst symptoms (i have like sensory issues anyway but this tingling made me foot sm more sensitive and made me feel violently ill) it stayed persistent for about 2 weeks always worse at night. atp they thought it was diabetes which was quickly disproved (blood tests obviously) then they were like hmm are you stressed are you anxious, girly yes but it was not anxiety. she said see if it’s still like that in a few days. me being me, i was a v shy person so i was not about to call back a few days later and bother the doctors even more. anyway yay! foot felt better and back to normal but then my eyes were so messed up i couldn’t read blah blah saw white spots everywhere like static my optician gave me glasses said they wouldn’t help the static vision but hopefully they help the blurriness that comes with - the doctors said it was a migraine and prescribed me strong shit for migraines i never picked it up i knew that was bullshit fucking migraines please. Anyway 2 weeks down the line my vision got better but i’m still left w static just not as bad to the point where i can’t read and write yk. then my leg dropped - my right one. at that point i was in tears i had enough like everyday i thought what have i done to deserve this you know? anyway doctors thought i was faking it to miss sixth form and told me i actually can walk i don’t need to hold onto my mum to walk- needless to say that was not the case and i want to never see that doctor again. messed me up mentally ibr started believing i am faking it, anyway it got worse my neck was weak my head dropped- i was kept in hospital overnight (St George’s) just to be told it’s anxiety and they refused to give me an mri and when my mum asked mya the consultant if it could be ms she said it definitely isn’t and for that i’ll never forgive her; i had what i call false seizures at one point (my body would be so incredibly weak that i’d give up and let myself fall then my body would twitch) - to a normal person it looked like a seizure hence my name for it, lucky for me it was the one thing that got the doctors to actually care since my sixth form sent me to A&E for 5 “seizures” in a row - stayed in hospital for 5 days had 3 mris (2 normal mris, 1 contrast colour mri) all abnormal all alike ms patients then a lumbar puncture (disgustingly painful procedure i must say) which 90% confirmed my RRMS. i got a private neurologist, i saw a rheumatologist, a dermatologist and then an MS specialist (2 of them) the priv neurologist said it’s MS for definite after my second set of mris done in november showed new lesions which really sucks cuz i only had the summer without symptoms :/ but anyway that brings us to now, my ms hug symptom is back and my fatigue and i may be one of the few ppl who had my ms cause a psychotic disorder. i am so close to giving up but i always remind myself i am not my illness right ? thanks for reading if you still are <3
@fzms93

One of the most mysterious things about ms is no 2 MS patients are a mirror of each other regarding symptoms. You can share a lot of similarities and experiences say fatigue varying degrees of fatigues , varying degrees of vertigo, coordination and balance etc . So what I am going to tell you never take no for an answer , you know what your feeling you aren’t crazy ! When you feel bad take care of your self and say I can’t do this . A lot of times they make you seem like a nutter ! Advocate for what your body needs xoxo 💋

@selma1

@fzms93 yes exactly! i find it hard to be able to do what im able to, i usually ignore my body because im under sm pressure from family, teachers, friends it’s like they forget i could barely walk before and i still can’t walk sometimes but no matter how many times i explain it, people never listen :(