Tysabri newbie!
Signed paperwork today to start tysabri in 2 weeks and just thought to ask others if they have any tips for me, like I had with avonex (keeping hydrated etc) I am JCV positive if that makes any difference to advice. Before today I was a bit worried about the risk of PML but my nurse assured me today about the tests / monitoring they do.
She also confirmed Gilenya is a back up if things weren't to work out which is nice for me, part of my positive thinking is knowing there is a plan and options in the future.
Being housebound into my 3rd month I am looking forward to it in a weird way and also that it will be with other people going through the same thing as I have not made any long term friends where I live that have MS to share things with.
Good luck with Tysabri, it is probably the most effective treatment available at the moment. My neurologist has been suggesting Tysabri for some years now, but somehow I have not had the courage... Maybe now, after failed attempt at starting Tecfidera - I have my appointment with neuro later this month. Anyway, hope you can tell us how it went ... and I hope you get the treatment result you hope for :-)
Hiya! Just thought I would say hello as I am also a Tysabri newbie to be :) Also JC positive so am going on it just for twelve months. And then hopefully onto BG12... If it's available then. It's a bit nerve wracking to say the least! I am off to Barts in London. Where is your centre?? I do hope that it really helps you, although I understand it can take a good few months to start having an effect for some. Good luck!!