@pottypete

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pottypete

What other conditions do you have?

What else pains you? MS is bad enough, but do you have other problems that compound your problems?

pottypete

@pottypete

I do have ME on top of having MS.My specialist said this was quite common amongst MS sufferers, though I'm not so sure. It does make differenciating between symptoms quite hard, especially with the fatigue. Initially, for about 3 years, I was absolutely without any energy whatsoever. It has eased though. I have recently gone down with another rare condition. Dyshidrotic eczema, plus another dermatitis. I also have Gastro-oesophageal reflux disease, IBS, cervical spondylitis, as well as other smaller problems. How many others have multiple health issues? I ask because it makes it so difficult to differentiate between problems at times and would like to hear if others suffer just as much. Are they al linked with the immune system?

pottypete

@pottypete

ME is also an Auto-Immune system Illness, also called yuppie flu or chronic fatigue syndrome.

jonnydrama

@jonnydrama

I've got epilepsy. Possibly caused by the MS, they can't make a definate link. No troubles with it now really, just 2 tablets a day for the rest of my life!

pottypete

@pottypete

<a href='https://shift.ms/community/people/Chels/' rel='nofollow'>@chels</a> I didn't list my Clinical depression, 'cause I forgot it, lol. Doh, memory probs too. I share your pain, in that I was abused as a kid too. Had PTSD from my army days. Bless you darling xx <a href='https://shift.ms/community/people/heather/' rel='nofollow'>@heather</a> I cope because I have no other choice. It's do or die and I'd rather do it with a sense of humour. Life ain't all bad. I also forgot to mention that I get reverse peristalsis. That's probably caused by the MS. So if I eat a meal, I have to be very careful not to eat too much, as my gullet will slip into reverse if my stomach is even slightly overfilled. Then I spend some time throwing up a perfectly good meal.

clearmri

@clearmri

I've got Raynards, a circulation problem that cause pins and needles in hands,fingers toes and feet. Also feel the cold very easily. Sure I have had it for years, but Rheumatologist picked it up, been worse last few years.

pottypete

@pottypete

<a href='https://shift.ms/community/people/clearmri/' rel='nofollow'>@clearmri</a> That's a bit greedy isn't it, doubling up on the pins and needles, lol. My mum had that too...most unpleasant in the cold.

reddivine

@reddivine

<a href='https://shift.ms/community/people/jonnydrama/' rel='nofollow'>@jonnydrama</a> : I too have epilepsy. When i was diagnosed, they reckoned the tremors in my hands had been caused by side effects of the drugs for epilepsy, but no, its actually MS! Oh joy! So insurers have WAY more questions for epilepsy than MS! Barmy I know. and employers? Don't make me laugh. I have qualifications coming out my ears, but any employer says - "do we want this woman, H&S nightmare, cant lift files, could collapse any minite, needs a rest every afternoon....hmm no" Shopmobility will not let me hire a scooter or motorised wheelchair cuz of the epilepsy. so its a manual for the MS. but then I needs a willing volunteer for the pushing of....

f3ng5hu1

@f3ng5hu1

I have hyper tension (high blood pressure) anxiety and depression and panic attacks. I'm on medication and I have support from local community mental health care team. Then early this year I was DX'd with the MS as well.

jonnydrama

@jonnydrama

<a href='https://shift.ms/community/people/reddivine/' rel='nofollow'>@reddivine</a> at least I know my options for wheelchair help!!! Can you get a manual chair you can spin the wheels on or do you not have the upper physical strength?

pottypete

@pottypete

<a href='https://shift.ms/community/people/globetrotter/' rel='nofollow'>@globetrotter</a> I hope that you have success in beating that cancer, my thoughts are with you.

pottypete

@pottypete

Well I'm more mouldering than smouldering, lol.

lightningduck

@lightningduck

I'm lucky that I don't have much else going on I messed up my right knee training for my Tae Kwon Do 1st Dan a few years ago and it's been a problem ever since; hard to use my right leg properly and it's sometimes hard to figure out what is physical damage and what is nuero damage when my right leg doesn't behave. A lot of little things like that, the cumulation of years of training martial arts and physical training hard in a +40 body (both knees sore, right elbow always sore from too many arm bars, right shoulder problems...)

pottypete

@pottypete

<a href='https://shift.ms/community/people/lightningduck/' rel='nofollow'>@lightningduck</a> My 8th Dan brother-in-law is also damaged from his martial arts. His hips and knees are shot from all the contact, poor bloke, but at least he hasn't got MS.

Henks

@Henks

<a href='https://shift.ms/community/people/pottypete/' rel='nofollow'>@pottypete</a> Dyshidrotic eczema for me too! Horrible, horrible blisters on my hands and feet about one month after my first MS symptom. It started on my hands which was embarrassing, then my feet.. It was all manageable then got crazy bad to the point where I couldn't even walk since my feet were so jam packed with huge water-filled blisters. The docs were baffled.. Ran tests and just said it was a super intense case of Dyshidrotic eczema.. Go figure. It still recurs, however much more manageable and I apply a steroid topical which tends to relieve the blistering. Before MS I never even got a cold.. I'm thinking there's a link!

pottypete

@pottypete

<a href='https://shift.ms/community/people/Henks/' rel='nofollow'>@Henks</a> My eczema isn't as bad as that, but it's very annoying. My feet are very sore to walk on. Though with all the other problems, I'm not sure which one is causing that. It makes me want to pull my hair out at times, but that would be difficult as I shave my head, lol.

cameron

@cameron

Lumbar spinal degeneration, laminectomy a few years ago; arthritis and wear and tear in one knee as a result of abnormal gait, currently awaiting orthotic and orthopaedic assessment, am expecting to have partial knee replacement but may be refused on account of the MS (and am younger than they like doing it); GORD; topical eczema/lichen plenus; mild depression.

lloyd

@lloyd

<a href='https://shift.ms/community/people/pottypete/' rel='nofollow'>@pottypete</a> it is my understanding that the BG-12 drug is treatment for psoriasis so I wonder if it would work for you as I will be going on it when they ok it here in the statesfor my ms and psoriasis. I also have regenerative spine with stenosis and severe fatigue which I hope will pass someday. The numbness on my entire left side makes me feel like a stroke victim at times because I drag my left leg like a zombie.

20fridays

@20fridays

I've had psoriasis for many years. It got better a oouple of years ago, but when my secondary progressive MS took a sudden downward turn last year, my psoriasis flared up alot. I'm sure it's linked given that Ps. is an auto-immune condition..or at least I think it is..

lloyd

@lloyd

Yes I had it bad on my calf's years ago and it all cleared up and come to think of it that is when I got sick with the ms. Give me back the psoriasis and take this ms away. Just a wish.

20fridays

@20fridays

Agreed. P. is a walk in the park, whereas no walking anywhere with ms and my wheelchair!

20fridays

@20fridays

thanks - it's really nice to know the facts. I'm not sure if i'm right in my assumption that it's linked to MS. Probably not...

lloyd

@lloyd

I heard that people with ms have also had Epstein bar virius as well as psoriasis and years ago I had both. They say 90% of the population has the Epstein bar in them but it only causes problems in some.

lloyd

@lloyd

I was wondering if all the drugs I did in the late sixties and seventies had something to do with it but they say no but who really knows.

pottypete

@pottypete

<a href='https://shift.ms/community/people/lloyd/' rel='nofollow'>@lloyd</a> You naughty boy! Lol. I was a good boy. I didn't do drugs until I got MS. Even then it sent me paranoid. Bugger, why didn't I try them sooner?

lightningduck

@lightningduck

OK, maybe an unanswerable question but: 1) Does this autoimmune issues that cause MS allow makes someone more likely to get other related diseases? 2) Does having MS make you more likely to get other diseases from a messed up CNS or other issues? 3) Do the drugs used to treat MS weaken your autoimmune system enough to be susceptible to other diseases?

lloyd

@lloyd

Good question. I was told I will not die from the ms but possibly from complications of another illness, but then again so will half the world. Who really knows?

lloyd

@lloyd

<a href='https://shift.ms/community/people/pottypete/' rel='nofollow'>@pottypete</a> I wasnt that bad the worst part was watching all my friends die or be murdered one by one and that made me wake up quick by the age of 20.

pottypete

@pottypete

<a href='https://shift.ms/community/people/lloyd/' rel='nofollow'>@lloyd</a> Glad to hear you sorted your life out. Drugs don't make life better, just different. I don't include prescription drugs in thatstatement, lol.