@peppergirl

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peppergirl

Treatment Problem

Hi everyone I have a video appointment with a consultant at the end of October as I've had my ocrevus stopped due to multiple covid risk factors. Type 1 diabetes, overweight (although it's only 6lbs now having lost 2 stone since Xmas) , hypertension (but OK on meds and I eat keto so it's not a problem). I took the JCV test and tested positive for that, so tysabri is a bit of an issue. I really just won't take fingolimod due to the risk of macular oedema, with being diabetic as well. I have active RRMS so I suppose I'm pretty limited with treatment options. It was all going really well with Ocrevus too...! I'll obviously see what the consultant comes up with and carry on with my research. I don't think I'll be back on the ocrevus for quite some time and I'm due a dose now, so I want to get back on treatment, anything, ASAP. I'm treated at the Walton Centre. I don't want to be fobbed off, maybe other MSers in a 'similar' situation have been allowed to continue with ocrevus and it's my consultant being too cautious? I know I'm fortunate to receive treatment and fairly patient and appreciate there's lots of people much worse off, but I don't want to leave things much longer to progress. Thanks all

Stumbler

@Stumbler

@peppergirl , you need to chase this up at the Infusion Centre as well. Other hospitals have recommenced infusions.

peppergirl

@peppergirl

thanks @stumbler