@northernlass , I've become somewhat of a "plumbing" expert. It can be very frustrating when your body starts to control you, rather than the other way round. Now, I wouldn't mind needing to rush to the toilet, but having unreliable legs as well is really taking the pee! Anyway, I got referred to Urology many moons ago. This is a different referral than the Incontinence team. Urology will give your plumbing system an MOT to see whether it's all functioning properly. Mine wasn't and I needed a surgical cystoscopy, or as I know it, the "Dynorod procedure"! This allowed me to successfully complete the Urological MOT. And my problems were now all down to the MS. So, it was down to a medical solution and "contingency arrangements". Recently (about two years ago), I got referred to Urology again as I'd heard about Percutaneous tibial nerve stimulation (PTNS), a form of electrical stimulation. It was a bit of a torturous journey as the MOT needed to be repeated. But, eventually, I saw the Urologist, who told me that PTNS wasn't very good and what I needed was Botox. The procedure had to be approved by the local Trust bean-counters and was given the go ahead. Yes, basically, it is the injection of Botox into the Bladder wall. Well, there's two ways into the bladder and they don't access it from the Kidneys! Imagine a Cystoscopy, where the camera is accompanied by a needle! :shock: :eek: I had it done last August and I can honestly say that it gave me a lot of my life back. It does tend to "deaden" the bladder and I found that you couldn't pee, even if you wanted to. Emptying was all by catheter, but I was already intermittently self-catheterising, so this was no great inconvenience to me. I believe it's wearing off now, so I may need another meeting with the camera and the needle. This is done under a general anaesthetic, due to plumbing "complications" specific to a male. Ladies can be done under a local. So, any other questions, let me know. I wouldn't say I'm an out-and-out expert, but I do know a "wee" bit! :lol:

Blimey @stumbler I never thought of how difficult the Botox would be for fellas.. (Crossing legs and grimacing again as I type) but glad to read that they knock you out.. and also that ladies could have it done via "the front door" so to speak.. but It all sounds a bit intrusive and I don't even understand what a catheter can do (My second visit to the head Neurologist a month after diagnosis led him to believe that I may have secondary progressive MS and would need a catheter at some point...??!!) but I am glad to say things have improved after the steroids but it is something that is constantly on my mind. (Crikey another "Green eyed monster " thing to put on my list .. Pee-ple who can go without a second thought.. :( ) All I can say is that I am so glad I have a RADAR key (bought from my local council reception for a few quid) and would look into one of the MS cards you have mentioned before but I'm not sure where I could use it, to jump queues for the loo..?? And I think that by the sounds you should have an accolade for being a "Plumbing-supremo" for sure well done you for being so brave too :)