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@mutley64 

EditedLast reply

mutley64

MRI Advice please

I arranged my second MRI privately a couple of weeks ago as I had been waiting for NHS appointment for July which I hadn't received due to current delays. I'm waiting for the results of this scan which was to check if any new lesions had occurred since my original one in January which found lesions in brain and c spine and to get a firm diagnosis. Today I received my NHS appointment for 7th August and I was going to cancel it but my husband feels I should have this in case I fall through the cracks with the NHS and any treatment may end up being delayed. Has anyone gone through this having both a private and NHS MRI ? I don't want to waste NHS resources but I am anxious to begin treatment if any is available
Manchester, England, United Kingdom
9
@Dawn_H
@Dawn_H
 

I completely understand, it's not only frustrating but scary specially when you haven't been full diagnosed, I did have problems getting my mri and waiting not only for them but the results. I wouldn't cancel the appointment I would still go and hopefully it will get your diagnose quicker, with treatment it depends on which type of ms and how if you are having relapes, I have msrr and I have only been diagnosed nearly 2 yrs and when you have been told it looks likely you have ms you just want the results asap so you can get the ball rolling have they done a lumber puncture yet to check the fluid? I'm here if you need to talk

@mutley64
@mutley64
 

Thank you @Dawn_H my Neurologist said he didn't think it could be anything else and even if lumber puncture does not show bands would still diagnosis probable ms. I'm in such a difficult position as I clearly don't want any new lesions but it may confirm diagnosis. I'm struggling with fatigue nerve pain falling short term memory loss and fainting . I just wasn't sure if I needed to take the NHS appointment as I had a private scan 2 weeks ago ? My next appointment with my Neurologist is end of September. Insurance company have declined my claim for Income protection stating I'm off with work related stress. Yes I am as a result of not being able to competently do my job having worked in the industry for 40 years suffering with fatigue anxiety and depression due to mental and physical difficulties due to Ms but I don't yet have a definite diagnosis I'm really struggling as I cant imagine being able to do my very demanding job role and the stress from that just makes all my symptoms worse