@lorag

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lorag

Saying No

I am feeling down cause just feel like shit. I am saying no to going out now which I never had done before no matter how I feel. I know everybody has been through this it just seems like one thing after another lately. Just want things to be like it was before :-(

Stumbler

@Stumbler

Oh, <a href='https://shift.ms/community/people/lorag/' rel='nofollow'>@lorag</a>, things always change and nothing stays the same. You've recently experienced a bad emotional scene, which has obviously knocked you back a bit. Don't let some shallow male impact your life to this extent. So, pick yourself up, dust yourself down and start all over again (cue for a song!) You've just forgotten about your inner strength - you still have it! Illegitimi non carborundum. 8-)

pottypete

@pottypete

I agree with stumbler. Go out anyway. I find that doing so, even when down, as your expectations are lower, consequentially, lead to a better experience on the whole. Life is for living, not for letting it pass by.

pottypete

@pottypete

<a href='https://shift.ms/community/people/lorag/' rel='nofollow'>@lorag</a> of course. xxx

lightningduck

@lightningduck

Agreed with Pete; go out and enjoy life, <a href='https://shift.ms/community/people/lorag/' rel='nofollow'>@lorag</a>

lorag

@lorag

thanks guys, but the reason i i say no is Its too hard to walk and tiring. just hope with new meds when i start will help. it still amazes me how MS can change soo quickly.

Stumbler

@Stumbler

<a href='https://shift.ms/community/people/lorag/' rel='nofollow'>@lorag</a>, it's so easy for us to take the easy option. However, we can become isolated in life. Sometimes, you have to grit your teeth and just do these things. Yes, do whatever is necessary to handle the logistics - take a stick or a wheelchair, as necessary, to avoid walking problems and tiredness. No-one ever said that life was easy. MS just throws us another challenge. Never give up.

reddivine

@reddivine

Yep, I been using a stick for ages, and just started using a wheelchair. Look into it even if you don't need it 100%....I don't need one 24/7 but omigod, in situations like you talking about, its a godsend. And yep there is life after wheelchair. I've taken one in taxi, on plane, on train and on bus. Just cuz you have MS does not mean you don't have a life. Its just DIFFERENT and requires a bit of adjusting. Get mates who will pick you up and take you home. Pick activities where there is little walking.

pottypete

@pottypete

A stick, crutches, a wheelchair. These are tools to enable us to carry on as normal a life as we can. They are not things to be embarassed by, rather, they are our allies in the battle that is life as an MSer.

cameron

@cameron

Sometimes we need different friends, as well.

Aileen

@Aileen

I find sometimes that going out makes me more stressed out than anything. Now, it's probably different here with the drinking culture (I'm Irish). I can't drink, I just have no tolerance for it so I'm automatically "strange". Nobody wants to give up their seat in a packed pub so it becomes very uncomfortable very quick! However, I have found ways to get out and enjoy things without it being all pubs and clubs. Last night for example I went for a meal with some of the girls and it was lovely. I must admit to thinking twice about it thinking it'd just be easier to stay in but I was so glad I went. It's very important to get out and enjoy life but personally I've become really really selfish and I'll only do things I want to do. I won't force myself to go along with the crowd unless it makes me happy. So get selfish, only do what makes you happy that way you'll feel better about putting in the effort to leave the house :)

Femke

@Femke

Hi there use everything that's available to make your life easier what ever that may be and try and plan your day a bit with spaces where you can rest . Send you lots of love and hope you feel a bit better soon !

Jenhen

@Jenhen

<a href='https://shift.ms/community/people/lorag/' rel='nofollow'>@lorag</a>, I can empathise with how you feel. Friends ask me out and sometimes, at the last minute I have to say no because I barely have enough energy to leave the sofa! I think, that is the part of ms that I have found the hardest. You have to listen to your body though, rest if you need to and make the most of it when you're feeling ok. Take care xx

f3ng5hu1

@f3ng5hu1

At least you can out in the world via the internet without leaving home, something that we couldn't do back in the 80's (well not like we do now anyway). I am a bit of a recluse myself, very rarely go out but I sympathize re your muscles and fatigue. There will be good and bad days as with most things in life. I hope you feel better in yourself soon though. xo