Tecfidera advice !
Hi, I started on Tecfidera nearly 4 weeks ago, all was ok for about 3 weeks, but the last 5 days have been horrendous!
Really bad stomach issues, I will spare the details but lost nearly 4 pounds in 3 days, and stomach cramps on a par with childbirth, no relief at all. Tried & failed to get hold of my MS team, so took myself off them yesterday.
I know stomach issues are normal - but this just seems extreme !!
Did anyone else suffer extreme side effects & then settle down ?
Thanks
Good evening, I've been on tecfadera since 2015 starting on a lower dose and then onto 240mg I was advised to eat plenty of food when taking them am and then pm the fatties the better, which I think may of helped with any stomach cramps, as time went on and the drugs were in my system I ate a lot healthier but made sure I ate plenty when taking them, in the early stages of taking tecfadera I did get bad hot flushes and go very red and feel like my head was on fire, I have not had any side affect at all now for years so my only advise would be eat plenty when taking tecfadera as it seemed to have worked for me, good luck x
Yeah, I read up beforehand and was ensuring I did eat well beforehand. Lower dose no reaction at all, first few days on higher dose fine, but then it all changed !! The cramps were the worst, frequently throughout the day, lasting nearly an hour each time, unable to stand, and sick at the same time 😕