Tysabri
Hi all, first post on here. I was diagnosed late February after experiencing first symptoms (numbness from waist down). Fully recovered from that now which I am thankful - at least on the outside :) had another MRI showing 3 mor lesions in brain in April and at my meeting with the consultant in May was offered a range of medications but have gone with the advice of the consultant and opted for Tysabri. What are people's experiences of this? I'm worried about PML and what I read on the internet doesn't help me only scares me more. We had a little boy in January and I am unsure of the risk as I want to be around for him.
Apologies if asked elsewhere but would appreciate advice and experience of how closely risk of PML is monitored.
Thanks in advance and hope you are all well.
Lewis :)
Do you know if you are jcv positive or negative? I think that's probably to single most important factor. When was your prior MRI and how did that look?
I'm not sure yet, they have taken blood and urine samples. I think that is what I am whittling about. I had MRI scans in February and then again in April which showed three new lesions in the part at the top of the spinal cord. If you were positive would you still opt for that treatment?