@laurenlucyjane 

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laurenlucyjane

Super fun new symptoms!!

Hey guys, So I was diagnosed in January and after recovering mostly from my first noticeable relapse I thought I was doing just fine. In the last month or so I've been having some bowel and bladder problems such as urgency and hesitation etc it's making me scared to leave my house or walk far or go in the car for more than a few minutes! I know it's not the most pleasant topic but it's really getting me down because this is very different to who I used to be I used to travel so far and do so much by myself! If anyone understands or has any tips I'd really appreciate it! 😊
@keld

Know exactly how u feel deal with this issue everyday for many years . Sadly i dont deal with it properly and i have had 8 uti's isince january one lasting 5 weeks so only advice i can offer is get an app with urology and try using catheters to make sure bladder emptys properly . Its all a awful leason thats is teaching everyone everyday and you need to try not avoid going out if can as u will isolate yourself and from experience its a sad lonely place to be xxx

@laurenlucyjane

Thank you @keld I have a continence nurse who great but they think the physical symptoms have given me severe anxiety which in turn has made symptoms worse so it's shitty cycle of awfulness! Hopefully I will learn to manage it all soon!