For Floreena about Optic neuritis

Floreena wants to know if her optic neuritis will recover soon as she has had it for some time. I have had 2, possibly 3 bouts of ON and they all recovered quickly. The first one in my left eye turned out to be a 98% loss of colour saturation 19/11/2004. I had an MRI in Jan 2005 costing 59€, cheaper than the galoleniumat 73€! By the time I saw my opthlmo Olivier Rios in Feb 1st 2005 it was 99% returned. I was followed up at CHU Rennes ("Not just the best MS clinic in France, but the best in Europe," an assessment with which I completely concur!). Then it cam back in 2013 in my right eye this time. I was triaged at A&E, where I was treated first for giant cell arteritis which can lead to blindness if not treated immediately. Then I got the diagnosis of ON again, though this was just pain and the first time was just sight loss. It got better even more quickly. I then had pain in my right eye in October 2020 when I was called in for a cataract removal which I declined because of the pain. I wasn't diagnosed but I had enough experience by now to think it was ON and despite having the cataract op postponed for the second time, I didn't want it done if there was any chance of inflammation. I got it done a month ago. ON was not my first symptom. By the time of the first flare up I'd had MS for as least 15, possibly 40 years! You know what weird stuff feels like and I think I have had MS all my adult life. My birth mother probably had it so I was a dead ringer for it, having had the EBV virus at 18 (a candidate suspect causality virus). All 3 episodes returned, though my French opthalmo reckoned after the first attck that it wasn't a total recovery. So the subsequent ones may have left me with further damage, but I haven't had the same level of quantitative analysis in Britain as I had the time in France. I don't have any serious sight problems now and ended the new lens has improved my eyesight a lot. In particular, the colour destruction I had the first time has been partly address by the new lens.