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@karolinaherbut 

EditedLast reply

karolinaherbut

Deciding on treatment..

I had my first zoom call appointment with my MS nurse today! We went over what treatments I should be looking into - even though I have been trying to choose what treatment to go onto since my diagnosis last month but I still feel really stuck! I am torn between Tysabri, Ocrevus, Mavenclad or Lemtrada... My MS nurse said that it's possible for me to go onto any of these however I wanna keep my life as normal as possible. Can anyone give me any personal insights on their experiences? Thank you :)
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@Kanga
@Kanga
 

I think it depends on you really. The MS trust have some useful information about treatment options but when I was diagnosed whilst different treatment options were discussed my Neurologist and I felt Tysabri was best as I have had a lot of relapses in a short space of time and the effectiveness is really good. Does it bother me that I have to go have an infusion every 28 days??? No not really. I quite like the idea of having a bit of 'Me' time. Am I scared about the risks of JC virus and Tysabri. A little bit but i am currently negative and I feel that there a lot of clinical safeguards built in, if I should ever test positive. I think the thing that swayed me was Tysabri is a good choice for people that are DMT virgins it's a bit more messy if you have to stop one of the others and then go onto Tysabri ( just what I read) I think if you type in each different drug in the search, you will get some useful info from previous posts. I think it's important that it's your choice and decision and don't be heavily swayed by the clinician ( as long as you have done your reasearch) All the best going forward

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@Vixen
@Vixen
 

Hi @karolinaherbut, I take Tecfidera but if I had the choice of the others, I'd go for Ocrevus, not least because it's the bright, shiny new DMD of them all! My sister (PPMS) is on it and it's gone well for her. I know the underlying message is to get going on a treatment, but don't feel rushed into deciding something. I hope you're OK and come to the right decision for you x

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