@kanjalina

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kanjalina

Exercise group anyone?!? :-)

Hi there all! My name is Natalie, I've has RRMS for 18 years. My walking has become a challenge in the past year or so and other than exercises I do at home, I am keen to get out more and exercise. I don't really know many others with MS that may be interested in being more active, but like me, don't necessarily have someone that can join them. If this is something you'd be interested in, please leave your comments and suggestions of things you would like to do, what areas you want to improve on etc. I am based in central London, so all of the pretty parks are relatively straight forward for me to meet at. Also, if someone has suggestions of other activities share, share, share!!!! Nat

Aliga

@Aliga

Hi @kanjalina I think that it is a great idea and wish that I could join you. Unfortunately I live across the pond in Northern Ireland so it would be difficult! I was a Walker /runner before my life turned upside down 5 years ago. Now I walk with crutches (slowly and painfully) but I'm determined to stay on my feet for as long as possible. Could you share some of the exercises that you do at home? I use a balance ball to try to strengthen my core muscles and small hands weights but don't do much else. Ali x

kanjalina

@kanjalina

Hi Ali, Thank you for responding to the post! Such a shame we are far apart... I also have to use a walking pole as I am not always steady on my feet. I do very similar exercises to you, a lot of core based exercises, yoga, sit-ups - I have introduced kettle balls aimed at building strength in my arms for added support when legs don't want to play along :-) Something that I have recently started that I find helpful is meditation. It focuses around breathing, which I never knew greatly elevates stress. I would suggest trying more stretching, I found simple ones such as calf stretches, to loosen the muscle movement helped me to move with a little less pain and discomfort, gradually overtime improved my ability to focus on other things I would find challenging such as balance. Hope this helps you a bit - most importantly, take things at your own pace. Nat x

Monica2015

@Monica2015

Hi @kanjalina, I'm based in zone 2 so just a tad closer than @aliga! I also have mobility issues, so I tend to drive everywhere and had been using crutches, but now trialling other alternatives. I visited Hyde Park with my son on Monday, went as a family to Greenwich on Tuesday, Putney yesterday and today Harrow! Tonight will be going out for dinner locally. So, I do venture out virtually daily. I am happy to attempt to meet half way if you are able? Re exercises, I have issues which preclude me doing the heavy weights I so love, so have been doing Pilates based ones at home and rehab Pilates too including when up to it. I'm not so interested in exercising outdoors as I'm extremely oversensitive to the cold, and my legs immediately go numb if too cold, but would consider alternatives, if they are feasible.

kanjalina

@kanjalina

Hi Monica! It is so good to hear from you, really pleased that you still keep quite active and venture out :-) I am based by Maida Vale and Hyde Park is really easy to get to. I completely understand the whole weather issue; it's a pain!!! I'm pretty open to suggestions activity wise..... Are you joined to a gym / classes anywhere? Nat

BowLocks

@BowLocks

I suspect East London is not terribly convenient, but can recommend the Ability Bow gym and it has MS specific exercise classes. http://www.abilitybow.co.uk/ms-gym-class

kanjalina

@kanjalina

Hi Bowlocks, Unfortunately it is quite far, but thanks so much for sending he information, hopefully I'll be able to make it over to a class!!

Aliga

@Aliga

@kanjalina - thanks for the tips re exercise and meditation Nat. I had unsuccessful back surgery so can't try the kettle bells, though I'd love to exercise with them. I think pilates and stretching sounds like the way ahead. I get bad crsmps/spasms in my legs & feet so stretching then out would probably be a good thing. I've some family in London, so if I'm over I'll give you a shout and we could have a stroll somewhere. Ali x

kanjalina

@kanjalina

Ali, aploiligies for the reply! Please make sure to get contact when you come to London :-) Nat x

Monica2015

@Monica2015

@kanjalina, in Fulham, so tend to do Pilates rehab in Putney as just across the bridge from me currently. However, I do have my gym membership at Nuffield Health in Fulham suspended currently (as has been for some time due to my overdoing the weights and relapsing immediately post each gym session! The trainers and doctor advised me to do so, as I literally am unable to put the brakes on and realise my limitations! This is a pattern in my behaviour that I've attempted to address many times, with limited success.) However, I have discussed with my Physio previously, who has suggested slowly (!!) easing myself back into it (if I'm able to reign myself in). As I'm uncertain I'm able to, I've been required to abstain totally thus far!). I am interested in Pilates and similar, and hopefully a return to weights( ? ) In the foreseeable future! There is also another extremely low impact class between Hammersmith and Fulham (designed to assist the brain realign) which I attempted only once but was extremely ill with recurring relapses so discontinued) but would wish to recommence. Are you able to travel at all?

kanjalina

@kanjalina

Hey Monica, That all sounds really good and promising! I am based by Maida Vale and would be able to travel; Hammersmith is relatively close and the Pilates class sounds like an option...

GalDriver

@GalDriver

I stretch every morning or I wouldn't be able to do anything. Life's limited enough without that. My walking is rubbish and painful but I have recently invested (not cheap!) in an exercise pool and am having a cabin built around it now, it's half done, which will have a wetroom too. BIG investment but I have high hopes for rebuilding some lost muscle and, hopefully, get my walking better. I'm a big fan of exercise but MS leaves us inconsistent in our commitments, doesn't it? The other problem I'm seeing here is that we all live in different areas so how about doing some sort of online exercise class? Do you reckon that'd work?? :-)

Monica2015

@Monica2015

Hi @kanjalina, sorry for delay in responding but my father had a heart attack! Thankfully, he's stable now, so I've returned once more. PM me your email details and we can arrange to meet for a tea and attempt a class. Speak soon.

Noelie

@Noelie

@kanjalina i would love to but between part time work and being a newish mum, not helped by the fact that i can't walk, i don't have much time. I'm based in Covent Garden, and go to yoga (1h) and body pump (45min) at a gym there. I'd would love to start swimming again. How about some core exercises, would you be able to come to St Jame's Square on Friday's lunchtime ? @monica2015 it's so hard not to push yourself isn't it. I totally understand. How do you know the limits if you don't reach them? I've had to stop all cardio workouts and just keep going to easy classes, the frustration is difficult to describe. I used to take fitness for granted, and feel like a pathetic shadow of my former self.