@jforster 

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jforster

Chest pain - Pluerisy / Costochondirtis?

Hi everyone, I’d love to hear from anyone who may be experiencing something similar. Ever since starting Ocrevus (it’s been about 2 years) I have noticed unexpected/unexplained chest pain. My doc doesn’t think it’s my heart (getting an ECG and Chest X-ray tomorrow). One doc said maybe costochondriris.. I’ve also done some googling and pleurisy sounds like it could be an option too. My symptoms are chest pain in both left and ride side, hurts on and off, sometimes a sharp stabbing pain and sometimes dull pain when I breathe deeply. I’ve recently had covid and the pain started a few weeks later once I recovered. It was pretty mild, no hospital or anything and got given Paxlovid. Prior to this, I had a similar pain a few months ago after a little cold. I am wondering if there’s any link to Ocrevus that anyone has noticed?
@Belleja

Ocrevus gave me chest pains (amongst other things) So much so that during treatment I'd end up hooked to ECG. High heart rate, low blood pressure. I swore it was causing damage. They started to hook me up to ECG prior to infusion to have a baseline and sure enough when treatment started heart was all over the place. Last infusion I had, resulted in full body hives, shortness of breath and the heart thing again. I switched to Mavenclad after that.

@Catlady

I get a lot of pleuritic pain. It hurts around the ribs all the way around on heavy breathing, moving or touch. Sometimes a certain part can be painful for months. Not on any treatment for my MSor seeing any MS specialist, as still waiting in limboland so can't blame it on that. I do have stomach and oesophageal trouble as well as a very bad set of lungs. So, it could be either of these for me, or 'MS hug', that dr's talk about but never explain the exact symptoms. But, since my MS has been worsening, I seem to get different, very bad bouts of pain that feels like tightening and burning, stabbing, quite horrible, goes all the way around the chest up to the neck to ears. Even cardiology have found nothing, it sounds and feels like a heartattack when happening. So, yes, similar symptoms, but not linked to the infusions. But, my lung condition is similar to the scarring some people have had after covid