@jadeshelley 

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jadeshelley

Heads scrambled

So I just had my call off my nurse yesterday to tell me I tested positive for the JC virus meaning I can’t have tysabri... which I didn’t want anyway haha. I chose ocrevus instead. But now I have to wait even longer while I wait for a referral to see a specialist as I have found a lump in my breast. I just feel like it’s one thing after another at the minute and I don’t know how to cope. If anyone has any coping mechanisms please share with me I will try anything at the minute! Thank you xx
@JamesC83

@jadeshelley I must admit that I am a little bias towards Tysabri as it’s been very good for but are you awareof extended interval dosing (EID) which reduces PML risk by factor of 10? Also the belief is that Ocrevus reduces the efficacy of the coronavirus. Having said, I have heard Ocrevus I very good and Tysabri is not for everyone. Why are you glad to come off that? Also hope everything goes ok with the lump

@keld

Hi luv , i am going through simular with soo much at once and i just tell myself what doesnt kill you will make you stronger mentally to cope. I hope goes ok in regards to the lump and there will always be someone here that will be online to help you deal with issues even for a rant ☺ its soo hard all the time to cope with all the problems you may have to deal with and i hope you can get a coping way to deal with it all .. all the best xxxxx